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Person-centred palliative home care from patient- and carer-perspectives – a scoping review
Sahlgrenska University hospital, Gothenburg, Sweden.ORCID iD: 0000-0002-8593-8182
Halmstad University, School of Health and Welfare. Sahlgrenska University hospital, Gothenburg, Sweden.ORCID iD: 0000-0002-2333-4316
Sahlgrenska University hospital, Gothenburg, Sweden.
2024 (English)In: The first Global Conference on Person-Centred Care: Knowledge(s) and Innovations for Health in Changing Societies: Abstract Book / [ed] Axel Wolf; Joakim Öhlén, Gothenburg: University of Gothenburg, 2024, p. 172-172Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Patients approaching end of life often express a desire to spend their last months – and even die – at home, if given appropriate support. Thus they may benefit from palliative care at home. The aim of this study was to summarize and synthesize the literature regarding patients’ and carers’ perspectives of palliative care at home through the analytic lens of the 6S‐model for person‐centred palliative care. A scoping review was performed with PubMed, CINAHL, and Scopus (2008- June 2019) including twenty-four studies illustrating the perspectives of the patient (1), patients and carers (4) and solely carers (19). A qualitative deductive analysis was applied using the 6S model: Self-image, Selfdetermination, Symptom relief, Social relationships, Synthesis and Strategies.  Palliative home care enabled patients and carers to maintain daily life, which strengthened their self-image. However, if carers’ expectations of the healthcare system were unmet, it could be perceived as a threat. Adequate symptom relief was sometimes described as a prerequisite for palliative home care, as severe symptoms caused uncertainty and distress. Fulfilling the patient’s wish to be cared for at home contributed to the experience of maintaining control: self- determination. Continuity and familiarity (including having family and friends around) was preferred when establishing relations with professionals. Social relationships were thus crucial to the patients and contributed to their wellbeing. Synthesis and strategies involved finding meaning in their situation and being able to share life stories. For carers, support from healthcare professionals was crucial, as they provided information about the patient’s condition and the unfolding of the dying process. Our results demonstrate that the dimensions in the 6S model are relevant for both patients and family caregivers when palliative care occurs at home. Database searches from more recent years are ongoing, which might modify the results. © University of Gothenburg Centre for Person-Centred Care and the authors of the respective contributions, 2024

Place, publisher, year, edition, pages
Gothenburg: University of Gothenburg, 2024. p. 172-172
Series
Gothenburg Series In Person-Centred Care
National Category
Palliative Medicine and Palliative Care Nursing
Research subject
Health Innovation, M4HP
Identifiers
URN: urn:nbn:se:hh:diva-56097ISBN: 978-91-531-0670-8 (electronic)OAI: oai:DiVA.org:hh-56097DiVA, id: diva2:1961968
Conference
The first Global Conference on Person-Centred Care: Knowledge(s) and Innovations for Health in Changing Societies, Gothenburg, Sweden, 13th–16th May, 2024
Available from: 2025-05-28 Created: 2025-05-28 Last updated: 2025-10-01Bibliographically approved

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Källstrand, Jeanette

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