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Patients’ Perceptions of Person‐Centered Care in Early Rheumatoid Arthritis: A Qualitative Study
Lund University, Lund, Sweden; Skåne University Hospital, Lund, Sweden; Spenshult Research and Development Centre, Halmstad, Sweden.ORCID iD: 0000-0001-5978-5242
Spenshult Research and Development Centre, Halmstad, Sweden; Lund University, Lund, Sweden; University of Southern Denmark, Odense, Denmark; Danish Hospital for Rheumatic Diseases, Sonderborg, Denmark.ORCID iD: 0000-0002-8081-579X
Lund University, Lund, Sweden; Skåne University Hospital, Lund, Sweden.ORCID iD: 0000-0002-9937-6352
Spenshult Research and Development Centre, Halmstad, Sweden; Swedish Rheumatism Association, Stockholm, Sweden.
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2021 (English)In: ACR Open Rheumatology, E-ISSN 2578-5745, Vol. 3, no 11, p. 788-795Article in journal (Refereed) Published
Abstract [en]

Objective: Most research on patient experiences of rheumatoid arthritis (RA) care is performed with patients who have established RA and less often with patients with early RA. Experiences of and expectations about health care may change over time, which is why the aim was to explore patients’ perceptions of person-centered care (PCC) early in the RA disease course.

Methods: Thirty-one patients with early RA were interviewed in this qualitative study. An abductive qualitative content analysis was conducted based on the framework of McCormack and McCance (1,2). The four constructs, prerequisites, care environment, person-centered processes, and person-centered outcomes, constituted the four categories in the deductive part of the study. An inductive analysis generated 11 subcategories exploring the content of PCC.

Results: For patients with early RA, PCC was described in terms of 1) prerequisites including being treated with respect, meeting dedicated health care professionals, and meeting professional competence; 2) care environment including having access to a multidisciplinary team, having access to health care, and encountering a supportive organization; 3) person-centered processes including being listened to, being supported, and being involved in decision-making; and 4) person-centered outcomes including being satisfied with received health care and achieving optimal health.

Conclusion: Genuine PCC is important for patients early in the RA disease course, supporting the implementation of a person-centered approach during all stages in the health care system. This study contributes to information about how to further develop person-centeredness in rheumatology care. © 2021 The Authors.

Place, publisher, year, edition, pages
Hoboken, NJ: John Wiley & Sons, 2021. Vol. 3, no 11, p. 788-795
National Category
Medical and Health Sciences Health Sciences Nursing
Identifiers
URN: urn:nbn:se:hh:diva-45813DOI: 10.1002/acr2.11326ISI: 000686554400001PubMedID: 34402602Scopus ID: 2-s2.0-85133365496OAI: oai:DiVA.org:hh-45813DiVA, id: diva2:1608016
Funder
Swedish Rheumatism Association, R-931953
Note

Funding: Reumatikerförbundet (The Swedish Rheumatism Association) and Skåne County Council’s Research and Development Foundation

Available from: 2021-11-02 Created: 2021-11-02 Last updated: 2025-10-01Bibliographically approved

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Bremander, AnnLarsson, Ingrid

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