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Norm-critical Approaches, a Way Forward to Increase Participation for Marginalized Children and Young People in Health Research & Design: A Scoping Review
Halmstad University, School of Health and Welfare.ORCID iD: 0000-0002-3064-0442
Halmstad University, School of Health and Welfare.ORCID iD: 0000-0003-4438-6673
Halmstad University, School of Health and Welfare.ORCID iD: 0000-0002-3720-693X
Halmstad University, School of Health and Welfare.ORCID iD: 0000-0002-3576-2393
2025 (English)In: Journal of Participatory Research Methods, E-ISSN 2688-0261, Vol. 6, no 3Article in journal (Refereed) Published
Abstract [en]

Engaging individuals with lived experience in research and design without incorporating critical perspectives on norms in knowledge production may result in tokenism and disempowerment. This scoping review pulls together method contributions from 38 recent health-related studies that involved children or young people in marginalized or vulnerable positions, to assist researchers and designers in methodological decisions and planning. We explore participation levels and norm-critical aspects of the studies and map their rationales for participation, theoretical frameworks, output types, and participatory tools. The analytical framework was based on youth participation models and literature in norm-critical innovation and critical participatory and health-related research. Patterns and variations in participation levels and norm-critical aspects are discussed in relation to the studies’ methodological differences and the ages of participants involved. We illustrate where high levels of both participation and norm-critical aspects were found and what signified these studies. © The Authors

Place, publisher, year, edition, pages
Cincinnati: University of Cincinnati , 2025. Vol. 6, no 3
Keywords [en]
Participatory research, Norm critical, Children, Young People, Scoping review, Participatory design, Health
National Category
Design Other Health Sciences Child and Youth Studies Science and Technology Studies
Research subject
Health Innovation, IDC; Smart Cities and Communities, REBEL
Identifiers
URN: urn:nbn:se:hh:diva-57407DOI: 10.35844/001c.138813OAI: oai:DiVA.org:hh-57407DiVA, id: diva2:2000851
Funder
Halmstad UniversityAvailable from: 2025-09-25 Created: 2025-09-25 Last updated: 2025-10-20Bibliographically approved
In thesis
1. Facilitating Child Participation in Care Contexts – A Norm Critical Design Approach
Open this publication in new window or tab >>Facilitating Child Participation in Care Contexts – A Norm Critical Design Approach
2025 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

This thesis explores how a norm-critical design approach can support the transformation of norms surrounding child participation in care contexts, with a focus on paediatric and social care. It illustrates how such an approach can generate impact in care contexts if applied in related research and tool development. Since a persistent gap remains between the ambition of increased child participation and its realisation in practice, it poses the questions: How can barriers to child participation in care be understood based on the perspectives of key actors? and How can a norm-critical design approach facilitate a shift in norms related to child participation in care, design, and research contexts? Rooted at the intersection of design, critical theory, and health science, the thesis applies a sociotechnical perspective on participation. It compiles five qualitative studies involving children and young adults, parents, care professionals, nursing students, and nursing teachers. Together, the studies provide practical insights into how design can counteract exclusionary norms and structures in care, design, and research contexts—contexts that are still largely defined by adult-centric and biomedical paradigms. The results underscore the importance of enabling children's voices when shaping the systems meant to support them, and putting the spotlight on norms, situated perspectives, and power positions when designing for participation. The comprehensive understanding includes a theoretical model visualising the role of norm-critical approaches in norm change and suggests four ways for design to facilitate norm transformation. While norm-critical design approaches have previously not been used to address the issue of child participation in care, this thesis shows great potential for such approaches to generate impact in care contexts if applied in related research and tool development. 

Place, publisher, year, edition, pages
Halmstad: Halmstad University Press, 2025. p. 144
Series
Halmstad University Dissertations ; 138
Keywords
Children, Participation, Norm Critique, Design, Healthcare, Care
National Category
Design Other Health Sciences Science and Technology Studies
Identifiers
urn:nbn:se:hh:diva-57488 (URN)978-91-89587-94-6 (ISBN)
Public defence
2025-11-07, S1022, Kristian IV:s väg 3, Halmstad, Halmstad, 09:15 (English)
Opponent
Supervisors
Available from: 2025-10-08 Created: 2025-10-08 Last updated: 2025-10-08Bibliographically approved

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Teleman, BrittaSvedberg, PetraIsaksson, AnnaNygren, Jens M.

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Teleman, BrittaSvedberg, PetraIsaksson, AnnaNygren, Jens M.
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