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Sparud-Lundin, CarinaORCID iD iconorcid.org/0000-0002-2535-9648
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Sparud-Lundin, C., Berg, M., Jenholt Nolbris, M., Koinberg, I., Ranerup, A. & Skärsäter, I. (2014). Promoting learning in web-based support for persons with long-term illness challenges and opportunities. In: : . Paper presented at Sigma Theta Tau International Honor Society, 2nd European Regional Conference: Leadership, Learning and Research in Nursing and Midwifery, Gothenburg, Sweden, 16-18 June, 2014.
Öppna denna publikation i ny flik eller fönster >>Promoting learning in web-based support for persons with long-term illness challenges and opportunities
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2014 (Engelska)Konferensbidrag, Poster (med eller utan abstract) (Refereegranskat)
Nationell ämneskategori
Omvårdnad
Identifikatorer
urn:nbn:se:hh:diva-25828 (URN)
Konferens
Sigma Theta Tau International Honor Society, 2nd European Regional Conference: Leadership, Learning and Research in Nursing and Midwifery, Gothenburg, Sweden, 16-18 June, 2014
Projekt
Gothenburg Center for Person-Centred Care
Forskningsfinansiär
Toward Person‐Centered Care in Long‐Term Illness: A Research Core Center
Tillgänglig från: 2014-06-23 Skapad: 2014-06-23 Senast uppdaterad: 2025-10-01Bibliografiskt granskad
Sparud-Lundin, C., Josefsson, U., Berg, M., Hellström, A.-L., Koinberg, I., Jenholt Nolbris, M., . . . Skärsäter, I. (2013). Use of participatory design in the development of person-centred web-based support for persons with long-term illness. European Journal for Person Centered Healthcare, 1(2), 369-380
Öppna denna publikation i ny flik eller fönster >>Use of participatory design in the development of person-centred web-based support for persons with long-term illness
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2013 (Engelska)Ingår i: European Journal for Person Centered Healthcare, ISSN 2052-5648, E-ISSN 2052-5656, Vol. 1, nr 2, s. 369-380Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Background: E-health solutions are increasingly being developed to meet patients’ preferences and promote their participation in healthcare. Few studies have explored the participatory design process from the perspective of person-centeredness, including how it becomes materialized in technology. This paper explores how applied participatory approaches and the design of 4 web-based interventions directed towards long-term illness correspond to key areas of person-centeredness. 

Methods: Data were collected during 2009 to 2012, from 4 Swedish research projects. The analysis followed an inductive approach involving a step-wise cross-case analysis. The purpose was to create shared knowledge and understanding of each separate case and to generate relevant categories.

Results: A number of question areas describe the dialogue with the case participants. Results of the dialogue are categorized into 4 support areas: psychological/emotional, personal, information and technical. Person-centeredness becomes visible in the participatory design process as the approach promotes the development of a holistic view of the person and the illness and a partnership between patients and carers. The use of communication technology exemplifies concrete materialization of person-centeredness in the design of the web-based supports. The purpose of the web supports and the shaping of the actual use of the functionalities are more abstract forms of materialization.

Conclusions: Our results contribute to a central development area within eHealth involving increased opportunities for patients to contribute actively in real time, obtaining access to information and sometimes interacting with carers. However, neither participatory approaches nor technology for online information and communication, can guarantee person-centeredness in isolation.

Ort, förlag, år, upplaga, sidor
Buckingham, UK: University of Buckingham Press, 2013
Nyckelord
Communication technology, cross-care analysis, design process, e-Health, long-term illness, participatory design, patient empowerment, person-centred care, shared decision-making, therapeutic alliance, web based support
Nationell ämneskategori
Omvårdnad
Identifikatorer
urn:nbn:se:hh:diva-25151 (URN)
Forskningsfinansiär
Toward Person‐Centered Care in Long‐Term Illness: A Research Core Center
Tillgänglig från: 2014-04-25 Skapad: 2014-04-25 Senast uppdaterad: 2025-10-01Bibliografiskt granskad
Identifikatorer
ORCID-id: ORCID iD iconorcid.org/0000-0002-2535-9648

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