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  • 1.
    Elf, Mikael
    et al.
    Department of Psychology, University of Gothenburg, Gothenburg, Sweden.
    Skärsäter, Ingela
    Institute of Health and Caring Sciences, University of Gothenburg, Gothenburg , Sweden.
    Krevers, Barbro
    Department of Medical and Health Sciences, Linköping University, Linköping, Sweden.
    'The web is not enough, it's a base': an explorative study of what needs a web-based support system for young carers must meet2011In: Informatics for Health and Social Care, ISSN 1753-8157, E-ISSN 1753-8165, Vol. 36, no 4, p. 206-219Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to gain knowledge about the specific needs that a web-based support system for young carers (YCs) must meet. Twelve young people with experience of caring for and supporting a close friend, partner or relative with mental illness (MI) were interviewed about their life situation, support needs and opinions about a hypothetical web-based support system. The transcribed interviews were analysed using content analysis. The analysed data were organised into three themes relating to support needs, each including a number of sub-themes: knowledge--understanding MI, managing the mentally ill person and self-care; communication--shared experiences, advice and feedback, and befriending; and outside involvement--acute relief, structured help and health care commitments. Web-based support for YCs may be a suitable way to meet the need for knowledge and to meet some of the needs for communication. We have outlined a concept of a geographically anchored web support to meet the need for befriending, facilitate connections to health and social care, and increase understanding and interaction between the parties involved. Further research is needed to corroborate the results.

  • 2.
    Lindberg, Susanne
    et al.
    Halmstad University, School of Information Technology, Halmstad Embedded and Intelligent Systems Research (EIS), Man and Information technology laboratory (MI-lab).
    Jormfeldt, Henrika
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), Health and Nursing.
    Bergquist, Magnus
    Halmstad University, School of Information Technology, Halmstad Embedded and Intelligent Systems Research (EIS), Man and Information technology laboratory (MI-lab).
    Unlocking design potential: Design with people diagnosed with schizophrenia2019In: Informatics for Health and Social Care, ISSN 1753-8157, E-ISSN 1753-8165, Vol. 44, no 1, p. 31-47Article in journal (Refereed)
    Abstract [en]

    With the expansion of e-health systems to more diverse and heterogeneous contexts and user groups, it is increasingly important to include users in design. Designers recognize the benefits of user participation, but including users with lowered cognitive and social abilities can be difficult. This paper intends to answer how these users can participate in the design of e-health systems. We conducted a case study with stakeholder interviews and design workshops with users diagnosed with schizophrenia to identify and overcome the challenges for participation. From the stakeholder interviews, we identified challenges relating to social interaction, technical experience, cognitive ability, and loss of individuality. We designed workshops that addressed these challenges and identify five strategies for unlocking the design potential of the participants: (1) work together with concrete materials and examples; (2) maintain a positive focus; (3) accept all ideas; (4) maintain and require realism; and (5) use previous interaction. We conclude that, when supported appropriately, it is possible to involve people diagnosed with schizophrenia. We also highlight the difficulty for someone not self-experienced to understand contexts as challenging and sensitive as this, and thus the value of user participation.

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