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  • 1.
    Einberg, Eva-Lena
    et al.
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI), Hälsofrämjande processer.
    Svedberg, Petra
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Enskär, Karin
    Hälsohögskolan i Jönköping, Jönköping, Sweden.
    Nygren, Jens
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Friendship from the perspective of children with experience of cancer: A focus group study2013Ingår i: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 60, nr suppl. 3, s. 43-43Artikel i tidskrift (Refereegranskat)
  • 2.
    Jenholt Nolbris, Margaretha
    et al.
    Centrum for Children's Right, Queen Silvia's Children's Hospital Sahlgrenska University, Gothenburg, Sweden.
    Wee Sævig, B. I.
    The Norwegian Cancer Society, Bergen, Norway.
    Challinor, J.
    Department of Physiological Nursing, University of California, San Francisco, USA.
    Skärsäter, Ingela
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI), Hälsofrämjande processer. Sahlgrenska Academy, Gothenburg University, Gothenburg, Sweden.
    Abramovitz, L. Z.
    UCSF Medical Center, University of California, San Francisco, USA.
    A Global Web-based Programme about Cancer in Language Specific for Staff, a Sick Child and Their Family2013Ingår i: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 60, nr Suppl. 3, s. 185-185, artikel-id P-0565Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose/Objective: To have expert paediatric oncology nurses to inform and explain childhood cancer diagnoses, treatments, side effects, situations and feelings, by developing a web-based programme.

    Materials and Methods: The programme will be developed and tested in three steps. Step 1 is to develop a web portal with animated pictures of cancer themes based on the ’See Hear Do’ programme in Sweden and Norway. Step 2 is to add text and audio in several languages for each theme (such as Arabic, English, Spanish). Step 3 is to develop two informational sections on the web portal: one section for staff and for the patient and family. The staff, children and families will evaluate each section as appropriate before the programme is published on the web portal. A participatory design method is going to be used. The programme will also be offered to nurses in the International Society of Paediatric Oncology and nursing working group of the Pediatric Oncology in Developing Countries committee for translation into their native languages.

    Results: Expected result is that the web portal can easily be downloaded via computer, iPad or mobile and can be used twofold. Staff can use this programme for self-education and for working with the child and family. The child and family can use the web programme in various situations during the child’s cancer treatment, e.g., explaining the diagnosis to family members, schoolmates, families’ networks, during phone calls using an interpreter or for persons with a visual or auditory disability.

    Conclusions: Goal of the project is to globalize childhood cancer education and information with a web-based programme including pictures, text and audio in various languages. The programme is designed to consider the professional’s information and the child and family’s needs and participation. The active role of all stakeholders to ensure cultural relevance is key to this project.

  • 3.
    Sjöberg, Carina
    et al.
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Carlsson, Ing-Marie
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Svedberg, Petra
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI), Hälsa och omvårdnad.
    Källstrand Eriksson, Jeanette
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI), Hälsa och omvårdnad.
    Nygren, Jens M.
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI), Hälsa och omvårdnad.
    Working for the Child's Best by Creating a Sheltered Place During Chemotherapy for Paediatric Leukaemia2017Ingår i: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 64, s. S400-S400Artikel i tidskrift (Övrigt vetenskapligt)
  • 4.
    Sjöberg, Carina
    et al.
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Svedberg, Petra
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Carlsson, Ing-Marie
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Nygren, Jens M.
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    The Importance of Place During Sedation for Intrathecal Chemotherapy in Pediatric Oncology Care2019Ingår i: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 66, nr S4, s. S446-S446Artikel i tidskrift (Övrigt vetenskapligt)
    Abstract [en]

    Background/Objectives: Children who are treated for childhood cancer are exposed to hospitalization, interaction with unfamiliar people in strange environments, and unpleasant, and sometimes, procedures. Having to wait for procedures is one of the worst situations, experienced by child patients. It is therefore important that hospitals provide environments that are non-stressful and safe for children in conjunction with procedures. Especially important, is the possibility for children who are hospitalized to sustain everyday activities, such as play, irrespective of their age and severity of illness.

    Objective: To assess differences in expenditure of time and dose of anesthetic drugs during sedation for intrathecal chemotherapy in two different environments- the children's ward, where the child was hospitalized, and the operation theatre.

    Design/Methods: The study is based on retrospective data from repeated treatment sessions recorded in operation planning programs and journals during 2011-2018 (n=164). Children of the ages 1-12 years (n=22) with varying number of treatments were included in the study. Data was analyzed with the Kruskal-Wallis test and post-hoc analyses included the Mann-Whitney Test with Bonferroni correction.

    Results: The time from the start of the procedure until the start of sedation was significantly lower at the children's ward, which was also the case if including the waiting time before the start of the procedure. No significant differences could be found regarding the dose of anesthetic drugs used.

    Conclusions: Sedation for intrathecal chemotherapy at the children's ward provides care to a higher extent in accordance with the needs of the child, by reducing the time for the procedure and thus the interference with the child’s everyday life at the hospital. © 2019 Wiley Periodicals, Inc.

  • 5.
    Stigmar, Jennie
    et al.
    Skåne University Hospital, Lund, Sweden.
    Nygren, Jens Martin
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Young Adult Cancer Survivor's Experiences of Psychosocial Rehabilitation2012Ingår i: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 59, nr 6, Special Issue: SI, s. 1122-1122Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose: The objective of this study was to establish innovation incentives based on young adult cancer survivor’s experiences of psychosocial rehabilitation following their treatment.

    Methods: Eligibility for the study cohort included diagnosis and treatment for paediatric acute lymphoblastic leukemia in Sweden prior to age 15 years between 1985 and 1997 and survival for at least 10 years (n = 416). A brief questionnaire including both closed and open questions were sent out by mail to all eligible subjects still living in Sweden and with a valid address in the population register (n = 374). Responses (n = 213, 57%) were analysed by descriptive statistics and qualitative content analysis.

    Results: Only a few of the survivors in the cohort had maintained contact with their paediatric oncology clinic (n = 30, 14%). However, continuation of regular clinical check-ups related to cancer treatment (n = 61, 28%) were more common. Of those who had no contact with health services, 61% were satisfied and 39% dissatisfied with the contact being terminated. A majority of survivors reported that they did not have experience of psychosocial rehabilitation focused on knowledge formation (58%), strategies for action (66%), or support (58%) to continue life the best way possible.

    Conclusion: This study highlights the potential for innovative resources for psychosocial rehabilitation during adolescence and the importance of supporting children’s and young adult’s initiatives to re-establishing contact with health care related to psychosocial rehabilitation. The school nurse can play a significant role in communication of such resources due to their proximity to children’s daily life post treatment.

  • 6.
    Svedberg, Petra
    et al.
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Arvidsson, Susann
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Larsson, Ingrid
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Carlsson, Ing-Marie
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Nygren, Jens M.
    Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
    Barriers And Enablers for Successful Implementation of the eHealth Service Sisom for Improved Child Participation in Paediatric Care - A Multi-Centre Study2019Ingår i: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 66, nr S4, s. S122-S122, artikel-id PPO18 SIOP19-1183Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background/Objectives:

    Participation in healthcare is one of the most important components in management of children’s disease. eHealth services that are adapted to the needs of children have the potential to reorganize how children and professionals work together. The digital interactive communication tool Sisom, was developed to give children in pediatric oncology care “a voice". However, the implementation of eHealth services, such as Sisom, in daily practice is rarely being investigated. The objective of this study was to explore the process and effects of implementing Sisom at four pediatric care centers in Sweden.

    Design/Methods:

    A process and effect evaluation design was used to investigate the implementation of Sisom in a clinical context at four pediatric care centers in Sweden. In total, 46 children, age 6- 13 years, participated and most of them had a cancer diagnosis. The children used Sisom at two occasions during 6 months. Following the use of Sisom, a printed report formed the basis for a forthcoming dialogue between professionals, children and their parents.

    Results:

    Key factors for successful implementation of Sisom was; i) alignment of the solution with values and goals of the organization, ii) professional’s beliefs in the usefulness and usability of the solution, and iii) professional’s willingness to apply changes in their professional roles promoted by the solution. Sisom directed healthcarecommunication from the parents’ voices toward the child’s voice and made children’s needs and preferences explicitly visible in decision-making.Sisom was experienced, by the children, as a user-friendly tool through which they could find ways to express themselves and share information with their parents and healthcare professionals.

    Conclusions:

    The results show how healthcare deliverycan be reorganized towards a child-centered approach, and the importance of implementing an eHealth service to support restructuring ofways of working with children’s participation to succeed with this.

1 - 6 av 6
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