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  • 1.
    Einberg, Eva-Lena
    et al.
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), Health promotion and disease prevention.
    Svedberg, Petra
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
    Enskär, Karin
    Hälsohögskolan i Jönköping, Jönköping, Sweden.
    Nygren, Jens
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
    Friendship from the perspective of children with experience of cancer: A focus group study2013In: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 60, no suppl. 3, p. 43-43Article in journal (Refereed)
  • 2.
    Jenholt Nolbris, Margaretha
    et al.
    Centrum for Children's Right, Queen Silvia's Children's Hospital Sahlgrenska University, Gothenburg, Sweden.
    Wee Sævig, B. I.
    The Norwegian Cancer Society, Bergen, Norway.
    Challinor, J.
    Department of Physiological Nursing, University of California, San Francisco, USA.
    Skärsäter, Ingela
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), Health promotion and disease prevention. Sahlgrenska Academy, Gothenburg University, Gothenburg, Sweden.
    Abramovitz, L. Z.
    UCSF Medical Center, University of California, San Francisco, USA.
    A Global Web-based Programme about Cancer in Language Specific for Staff, a Sick Child and Their Family2013In: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 60, no Suppl. 3, p. 185-185, article id P-0565Article in journal (Refereed)
    Abstract [en]

    Purpose/Objective: To have expert paediatric oncology nurses to inform and explain childhood cancer diagnoses, treatments, side effects, situations and feelings, by developing a web-based programme.

    Materials and Methods: The programme will be developed and tested in three steps. Step 1 is to develop a web portal with animated pictures of cancer themes based on the ’See Hear Do’ programme in Sweden and Norway. Step 2 is to add text and audio in several languages for each theme (such as Arabic, English, Spanish). Step 3 is to develop two informational sections on the web portal: one section for staff and for the patient and family. The staff, children and families will evaluate each section as appropriate before the programme is published on the web portal. A participatory design method is going to be used. The programme will also be offered to nurses in the International Society of Paediatric Oncology and nursing working group of the Pediatric Oncology in Developing Countries committee for translation into their native languages.

    Results: Expected result is that the web portal can easily be downloaded via computer, iPad or mobile and can be used twofold. Staff can use this programme for self-education and for working with the child and family. The child and family can use the web programme in various situations during the child’s cancer treatment, e.g., explaining the diagnosis to family members, schoolmates, families’ networks, during phone calls using an interpreter or for persons with a visual or auditory disability.

    Conclusions: Goal of the project is to globalize childhood cancer education and information with a web-based programme including pictures, text and audio in various languages. The programme is designed to consider the professional’s information and the child and family’s needs and participation. The active role of all stakeholders to ensure cultural relevance is key to this project.

  • 3.
    Sjöberg, Carina
    et al.
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
    Carlsson, Ing-Marie
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
    Svedberg, Petra
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), Health and Nursing.
    Källstrand Eriksson, Jeanette
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), Health and Nursing.
    Nygren, Jens M.
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), Health and Nursing.
    Working for the Child's Best by Creating a Sheltered Place During Chemotherapy for Paediatric Leukaemia2017In: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 64, p. S400-S400Article in journal (Other academic)
  • 4.
    Sjöberg, Carina
    et al.
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
    Svedberg, Petra
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
    Carlsson, Ing-Marie
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
    Nygren, Jens M.
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
    The Importance of Place During Sedation for Intrathecal Chemotherapy in Pediatric Oncology Care2019In: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 66, no S4, p. S446-S446Article in journal (Other academic)
    Abstract [en]

    Background/Objectives: Children who are treated for childhood cancer are exposed to hospitalization, interaction with unfamiliar people in strange environments, and unpleasant, and sometimes, procedures. Having to wait for procedures is one of the worst situations, experienced by child patients. It is therefore important that hospitals provide environments that are non-stressful and safe for children in conjunction with procedures. Especially important, is the possibility for children who are hospitalized to sustain everyday activities, such as play, irrespective of their age and severity of illness.

    Objective: To assess differences in expenditure of time and dose of anesthetic drugs during sedation for intrathecal chemotherapy in two different environments- the children's ward, where the child was hospitalized, and the operation theatre.

    Design/Methods: The study is based on retrospective data from repeated treatment sessions recorded in operation planning programs and journals during 2011-2018 (n=164). Children of the ages 1-12 years (n=22) with varying number of treatments were included in the study. Data was analyzed with the Kruskal-Wallis test and post-hoc analyses included the Mann-Whitney Test with Bonferroni correction.

    Results: The time from the start of the procedure until the start of sedation was significantly lower at the children's ward, which was also the case if including the waiting time before the start of the procedure. No significant differences could be found regarding the dose of anesthetic drugs used.

    Conclusions: Sedation for intrathecal chemotherapy at the children's ward provides care to a higher extent in accordance with the needs of the child, by reducing the time for the procedure and thus the interference with the child’s everyday life at the hospital. © 2019 Wiley Periodicals, Inc.

  • 5.
    Stigmar, Jennie
    et al.
    Skåne University Hospital, Lund, Sweden.
    Nygren, Jens Martin
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
    Young Adult Cancer Survivor's Experiences of Psychosocial Rehabilitation2012In: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 59, no 6, Special Issue: SI, p. 1122-1122Article in journal (Refereed)
    Abstract [en]

    Purpose: The objective of this study was to establish innovation incentives based on young adult cancer survivor’s experiences of psychosocial rehabilitation following their treatment.

    Methods: Eligibility for the study cohort included diagnosis and treatment for paediatric acute lymphoblastic leukemia in Sweden prior to age 15 years between 1985 and 1997 and survival for at least 10 years (n = 416). A brief questionnaire including both closed and open questions were sent out by mail to all eligible subjects still living in Sweden and with a valid address in the population register (n = 374). Responses (n = 213, 57%) were analysed by descriptive statistics and qualitative content analysis.

    Results: Only a few of the survivors in the cohort had maintained contact with their paediatric oncology clinic (n = 30, 14%). However, continuation of regular clinical check-ups related to cancer treatment (n = 61, 28%) were more common. Of those who had no contact with health services, 61% were satisfied and 39% dissatisfied with the contact being terminated. A majority of survivors reported that they did not have experience of psychosocial rehabilitation focused on knowledge formation (58%), strategies for action (66%), or support (58%) to continue life the best way possible.

    Conclusion: This study highlights the potential for innovative resources for psychosocial rehabilitation during adolescence and the importance of supporting children’s and young adult’s initiatives to re-establishing contact with health care related to psychosocial rehabilitation. The school nurse can play a significant role in communication of such resources due to their proximity to children’s daily life post treatment.

  • 6.
    Svedberg, Petra
    et al.
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
    Arvidsson, Susann
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
    Larsson, Ingrid
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
    Carlsson, Ing-Marie
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
    Nygren, Jens M.
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
    Barriers And Enablers for Successful Implementation of the eHealth Service Sisom for Improved Child Participation in Paediatric Care - A Multi-Centre Study2019In: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Pediatric blood and cancer, Vol. 66, no S4, p. S112-S112Article in journal (Refereed)
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