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  • 1.
    Ahmadi, Nasser S.
    et al.
    University of Gothenburg, Gothenburg, Sweden.
    Månsson, Jörgen
    University of Gothenburg, Gothenburg, Sweden.
    Lindblad, Ulf
    University of Gothenburg, Gothenburg, Sweden.
    Hildingh, Cathrine
    Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), Health promotion and disease prevention.
    Breathlessness in everyday life from a patient perspective: A qualitative study using diaries2014In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 12, no 3, p. 189-194Article in journal (Refereed)
    Abstract [en]

    Objective: Breathlessness is a subjective symptom, which makes it difficult to define and understand. The aim of the present study was to illuminate how patients suffering from breathlessness experience their everyday life. Method: The study was a qualitative study, and the focus of the analysis was the patients' descriptions of their experiences of breathlessness using a diary with two unstructured questions for a period of 7 consecutive days. Sixteen participants: 7 men, mean age 65 ± 7 (range 55-73 years old), and 9 women, mean age 65 ± 9 (range 50-72 years old) participated in the study. Results: Two themes emerged from the analysis: 1) Impaired quality of life and 2) symptom tolerance and adaptation. The theme "impaired quality of life" included the categories limited physical ability, psychological burdens, and social life barriers. The theme "symptom tolerance and adaptation" included importance of health care, social support, hobbies and leisure activities, and coping strategies. Significance of results: The findings in our study showed that patients, in spite of considerable difficulties with shortness of breath, found relief in several types of activities, in addition to drug therapy. The result indicates that the "biopsychosocial model" is an appealing approach that should be discussed further to gain a better understanding of breathlessness. Copyright © Cambridge University Press 2013.

  • 2.
    Dehlin, Lena
    et al.
    Halmstad University, School of Social and Health Sciences (HOS), Centre of Research on Welfare, Health and Sport (CVHI).
    Mårtensson Rag, Lena
    Research and Development Unit, Varberg Hospital, Varberg, Sweden.
    Adolescents' experiences of a parent's serious illness and death2009In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 7, no 1, p. 13-25Article in journal (Refereed)
    Abstract [en]

    Objective:

    Adolescence is characterized by increasing liberation from parents as the young person evolves into an independent individual. Experiencing the serious illness and death of a parent during this phase implies great stress. Serious illness involves uncertainty, worry, and hope at the same time that it is necessary for everyday life to function. This study sought to describe adolescents' experiences in the serious illness and death of a parent.

    Methods:

    The study was carried out using a qualitative method. Data were collected in interviews with five adolescents who were 14-17 years of age when one of their parents died.

    Results:

    The results show that the parent's illness was a strong threat, as the adolescents understood that their own and the family's lives would be greatly changed by the illness/death. The incomprehensibility of the parent's serious illness and death was a threatening condition on its own. The adolescents strived to make the inconceivable more conceivable to understand what was happening. They also described the necessity of finding different ways of relating to and managing the threat, such as restoring order, seeking closeness, adapting, gaining control, avoiding talking about the illness, not accepting and counting the parent out. The adolescents described feelings of being alone and alienated, even though they were close to family and friends and they did not actively seek support. The lives of the adolescents were changed by their experiences, beyond their bereavement over the parent. They felt that they had become more mature than their friends and that there had been a change in their thinking about life, changes in values, and changes in their views of relationships with other people.

    Significance of results:

    The results of the present study can form a basis for developing a support program whose purpose would be to prevent effects on health.

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