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Psychological well-being over time among informal caregivers caring for persons with dementia living at home
Lund University, Lund, Sweden.ORCID iD: 0000-0002-2523-8440
University of Witten/Herdecke, Witten, Germany.
Maastricht University, Maastricht, The Netherlands.
University of Witten/Herdecke, Witten, Germany.
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2016 (English)In: Aging & Mental Health, ISSN 1360-7863, E-ISSN 1364-6915Article in journal (Refereed) Epub ahead of print
Abstract [en]

Objectives: To investigate informal caregivers’ psychological well-being and predicted increase in psychological well-being, when caring for persons with dementia (PwDs) living at home, related to caregiver, PwD and formal care (FC) factors.

Method: A cohort study at baseline and 3 months’ follow-up in eight European countries. Caregivers included (n = 1223) were caring for PwDs aged ≥ 65 years at home. Data on caregivers, PwDs and FC were collected using standardized instruments. Regression analysis of factors associated with caregiver psychological well-being at baseline and 3 months later was performed.

Results: Factors associated with caregiver psychological well-being at baseline were positive experience of caregiving, low caregiver burden, high quality of life (QoL) for caregivers, male gender of PwD, high QoL of PwD, few neuropsychiatric symptoms and depressive symptoms for the PwD. At follow-up, caregivers with increased psychological well-being experienced of quality of care (QoC) higher and were more often using dementia specific service. Predicting factors for caregivers’ increased psychological well-being were less caregiver burden, positive experience of caregiving, less supervision of the PwD and higher caregiver QoL, if PwD were male, had higher QoL and less neuropsychiatric symptoms. Furthermore, higher QoC predicted increased caregivers’ psychological well-being.

Conclusion: Informal caregiving for PwDs living at home is a complex task. Our study shows that caregivers’ psychological well-being was associated with, among other things, less caregiver burden and higher QoL. Professionals should be aware of PwD neuropsychiatric symptoms that might affect caregivers’ psychological well-being, and provide proper care and treatment for caregivers and PwDs. © 2016 Informa UK Limited, trading as Taylor & Francis Group

Place, publisher, year, edition, pages
Abingdon, Oxon: Routledge, 2016.
Keyword [en]
Dementia, caregivers, health professionals, home care services, adaptation, psychological
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-31595DOI: 10.1080/13607863.2016.1211621PubMedID: 27463390ScopusID: 2-s2.0-84979997852OAI: oai:DiVA.org:hh-31595DiVA: diva2:947063
Funder
EU, FP7, Seventh Framework Programme, 242153
Available from: 2016-07-06 Created: 2016-07-06 Last updated: 2017-01-09

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Lethin, ConnieSaks, KaiZabalegui, AdelaidaChallis, David JKarlsson, Staffan
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Citation style
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