Family caregivers experiences of formal care when caring for persons with dementia through the stages of the disease
2016 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 30, no 3, 526-534 p.Article in journal (Refereed) Published
BACKGROUND: Family caregivers' experiences of formal care when caring for persons with dementia through the process of the disease is sparsely investigated.
AIMS: To investigate family caregivers' experiences of formal care when caring for a person with dementia, through the stages of the disease.
DESIGN: A qualitative approach with focus group interviews.
METHODS: Four focus group interviews were conducted in October 2011 with 23 spouses and adult children of persons with dementia and analysed with content analysis.
RESULTS: The participants' experiences of formal care when caring for a person with dementia were captured in the theme 'Familycaregiving requires collaboration with formal care to get support adjusted to needs specific to the stages of dementia'. This can be broken down into the categories 'The dementia diagnosis - entry into formal care as a novice family caregiver', 'Needing expanded collaboration with formal care to continue care at home' and 'Being dependent on a nursing home and trying to maintain involvement'.
CONCLUSION: Family caregiving requires collaboration with formal care to get support adjusted to the individual's needs, specific to the stages of dementia. Caregivers experience a transition process with three main turning points: the dementia diagnosis; when they realise increased need for formal care to continue caring at home; and when the person with dementia is moved into a nursing home. The interviewed caregivers experience formal care reactive to their needs and this often promoted unhealthy transitions. Formal careneeds to be proactive and deliver available care and support early on in the dementia trajectory. Interventions should focus on facilitating a healthy transition for family caregivers through the trajectory of the dementia disease to ensure their well-being. © 2015 Nordic College of Caring Science.
Place, publisher, year, edition, pages
Chichester: Wiley-Blackwell, 2016. Vol. 30, no 3, 526-534 p.
family caregivers, experiences, formal care, dementia, Alzheimer’s disease, trajectory, nursing, qualitative research, focus groups, transition theory
IdentifiersURN: urn:nbn:se:hh:diva-31592DOI: 10.1111/scs.12275PubMedID: 26346507ScopusID: 2-s2.0-84941082921OAI: oai:DiVA.org:hh-31592DiVA: diva2:947055
FunderEU, FP7, Seventh Framework ProgrammeEuropean Science Foundation (ESF), 09-RNP-049
Funding: European Commission – the 7th framework, Greta and Johan Kochs foundation, The Swedish Institute for Health Sciences, European Science Foundation Research Network Program ‘REFLECTION' (09-RNP-049).2016-07-062016-07-062016-08-30Bibliographically approved