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Care and Service at Home for Persons With Dementia in Europe
Department of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
Older People's Health and Person-centred Care & Swedish National Graduate School for Competitive Science on Ageing and Health (SWEAH), Department of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
University of Turku, Finland & Turku University Hospital, Finland.
Gerontopôle Alzheimer´s Disease Research and Clinical Center, Toulouse University Hospital, France.
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2015 (English)In: Journal of Nursing Scholarship, ISSN 1527-6546, E-ISSN 1547-5069, Vol. 47, no 5, 407-416 p.Article in journal (Refereed) Published
Abstract [en]

Purpose: To describe available and utilized formal care and service at home for persons with dementia, from diagnosis to end-of-life stage, in eight European countries.

Design: A descriptive cross-country design concerning eight European countries as a part of the European research project RightTimePlaceCare.

Methods: The research team in each country used a mapping system to collect country-specific information concerning dementia care and service system. The mapping system consists of 50 types of care and service activities. Sixteen of the 50 predefined activities concerning care and service at home were selected for this study and subdivided into three categories, following the stages of dementia.

Findings: Availability was reported to be higher than utilization, and the findings indicated more similarities than differences among the eight countries involved. Even though there were several available activities of "basic care and services" and "healthcare interventions," they were utilized by few in most countries. Furthermore, "specialized dementia care and services" were sparsely available and even more sparsely utilized in the participating countries.

Conclusions: The findings indicated that persons with dementia in Europe received formal care and service on a general, basic level but seldom adjusted to their specific needs.

Clinical Relevance: This study describes the gap between service provision and utilization enabling nurses to develop individually adjusted care plans for persons with dementia during the progress of the disease. The findings do not include matters of quality of care or how to best organize effective care and services. However, the activities of care and services presented here should shed light on what room there is for improvement when it comes to enabling persons with dementia to go on living at home. © 2015 Sigma Theta Tau International.

Place, publisher, year, edition, pages
Hoboken: Wiley-Blackwell Publishing Inc., 2015. Vol. 47, no 5, 407-416 p.
Keyword [en]
Dementia, geriatric nursing, home care and services, home health nursing
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-31590DOI: 10.1111/jnu.12158ISI: 000360797000005PubMedID: 26255994Scopus ID: 2-s2.0-84940788340OAI: oai:DiVA.org:hh-31590DiVA: diva2:947041
Funder
EU, FP7, Seventh Framework Programme, 242153Swedish Research CouncilEuropean Science Foundation (ESF), 09-RNP-049
Note

Department of Health Sciences

Swedish Research Council

European Science Foundation Research Network Programme. Grant Number: 09-RNP-049

Available from: 2016-07-06 Created: 2016-07-06 Last updated: 2017-11-28Bibliographically approved

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Karlsson, Staffan

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