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Barns upplevelser av att leva med synnedsättning
Halmstad University, School of Health and Welfare.
Halmstad University, School of Health and Welfare.
2016 (Swedish)Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
Abstract [sv]

Barn med funktionsnedsättningar upplever mer problem med hälsan och lägre livskvalitet än barn utan funktionsnedsättning. En integrativ litteraturstudie användes för att beskriva och belysa barns upplevelser av att leva med synnedsättning. En analys av 13 artiklar utfördes. Barn med synnedsättning beskrev bland annat hur de undvek sociala situationer där problem relaterat till synnedsättningen kunde uppstå.Många barn deltog tillsammans med sina familjer i fritidsaktiviteter anordnade för barn med synnedsättning arrangerade av olika organisationer. Barnen beskrev både positiva och negativa upplevelser av sina möten med vården. Några av barnen beskrev en frustration över att behöva förklara sitt tillstånd för vårdpersonal som inte var insatta i deras hälsohistorik. Fysisk aktivitet och skola var ett återkommande ämne i flera studier och barnens självkänsla och självförtroende påverkades av möjligheterna till att delta inom dessa områden. Barnen upplevde besvikelse och frustration över den stigmatisering som en synnedsättning innebar. Studien belyser ett relativt outforskat ämne där forskning inriktad på att mäta välbefinnande hos barn och ungdom som lever med synnedsättning är sparsam både utomlands och i Sverige. Genom att samla den befintliga forskningen kan kunskapen öka och leda till en mer individanpassad vård och omvårdnad.

Abstract [en]

Children with disabilities experience more problems and difficulties with their health and decreased quality-of-life conditions than other children. An integrative litteraturestudy was used to describe the experiences of children with visual impairment and their everyday-life. This study includes an anlysis of 13 articles. The children described scenarios in which social settings were avoided due to problems or concerns that may arise involving the visual impairment. Many of the children with visual impairment and their families attended leisure services that were arranged by different childrens organisations. The children described both positive and negative experiences when meeting with their caregivers. Some of the children described a frustration of having to explain their medcial and health condition to caregivers who were not familiarwith their medical and personal history. A recurring theme in several studies was physical activity and school and how self-esteem and confidence of the children often depended on opportunities to participate in these subjects. Children experienced disappointments and frustrations over the stigmatisation that visual impairment involved. The study encompasses a topic that is relatively unexplored and in need of further research to provide greater understanding. Research that focuses on evaluating the well being of children and youth living with vision loss is sparingly both in Sweden and abroad. By summarizing the existing research, increased knowledge could lead to a more individualized nursing care for these children.

Place, publisher, year, edition, pages
2016. , 24 p.
Keyword [en]
Children, Experience, Visual impairment, Wellbeing
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-31068OAI: oai:DiVA.org:hh-31068DiVA: diva2:934349
Subject / course
Nursing
Supervisors
Available from: 2016-06-13 Created: 2016-06-08 Last updated: 2016-06-13Bibliographically approved

Open Access in DiVA

fulltext(649 kB)135 downloads
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File name FULLTEXT02.pdfFile size 649 kBChecksum SHA-512
a34e7a338ec842858696a85a273503dbc63827f80658eaecdf8e4d3711ad003ec43a845a40f4574f7761a4ba7ad7d34d6eeb6ad81cab4cdb487c8c1a8add56ff
Type fulltextMimetype application/pdf

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf