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Being in transit and in transition: The experience of time at the place, when living with severe incurable disease - a phenomenological study
Haraldsplass Deaconess University College, Bergen, Norway & University in Bergen, Bergen, Norway.
Haraldsplass Deaconess University College, Bergen, Norway & Linnaeus University, Växjö, Sweden.ORCID iD: 0000-0003-0017-5188
University of Agder, Agder, Norway.
Haraldsplass Deaconess University College, Bergen, Norway & University in Bergen, Bergen, Norway.
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2014 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 28, no 3, 458-468 p.Article in journal (Refereed) Published
Resource type
Text
Abstract [en]

The aim of this study is to describe the experience of time as it presents itself at the place being situated when living with severe incurable disease and receiving palliative care. The empirical data consist of 26 open-ended interviews with 23 patients receiving palliative care at home, at a palliative day care, in a palliative bed unit in hospital or in a nursing home in Norway. A common meaning of a shifting space for living emerged from the analysis and was revealed through three different aspects: (i) Transition from a predictable to an unpredictable time: To live with severe incurable disease marks a transition to a changed life involving an ongoing weakened and altered body with bothersome symptoms making experience of time different and unpredictable. (ii) Transition between a safe and unsafe time: When time is unpredictable, feeling safe is revealed as essential to how time is experienced at the place being situated. (iii) To be in transition from a homely to a homeless existence: In a time of increased bodily weakness, unpredictable ailments and displacements, the sense of belonging to the place is revealed as significant to the experience of time. Not knowing where to be in a time of change is like an existential cry of distress where the foothold in existence is lost. The findings are discussed and interpreted as an embodied experience originating from the passage of time continually affecting life sometimes so fundamentally that it marks a transition to a changed space of life that is reflected in the experience of time. © 2013 Nordic College of Caring Science.

Place, publisher, year, edition, pages
Chichester: Wiley-Blackwell, 2014. Vol. 28, no 3, 458-468 p.
Keyword [en]
Experience of time, Palliative care, Transition, Place of care, Atmosphere, Embodied, Phenomenology
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
URN: urn:nbn:se:hh:diva-30438DOI: 10.1111/scs.12067ISI: 000340288100005PubMedID: 23952716Scopus ID: 2-s2.0-84904898315OAI: oai:DiVA.org:hh-30438DiVA: diva2:920900
Note

The research is funded by Haraldsplass Deaconess University College.

Available from: 2013-07-09 Created: 2016-03-03 Last updated: 2016-04-20Bibliographically approved

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Cite
Citation style
  • apa
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Language
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