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Shared decision-making in mental health care – A user perspective on decisional needs in community-based services
Dalarna University, Falun, Sweden.
Umeå University, Umeå, Sweden.
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), Health promotion and disease prevention.ORCID iD: 0000-0003-4438-6673
Dalarna University, Falun, Sweden.ORCID iD: 0000-0002-3866-5636
2016 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 11, 30563Article in journal (Refereed) Published
Abstract [en]

Background: Shared decision-making (SDM) is an emergent research topic in the field of mental health care and is considered to be a central component of a recovery-oriented system. Despite the evidence suggesting the benefits of this change in the power relationship between users and practitioners, the method has not been widely implemented in clinical practice.

Objective: The objective of this study was to investigate decisional and information needs among users with mental illness as a prerequisite for the development of a decision support tool aimed at supporting SDM in community-based mental health services in Sweden.

Methods: Three semi-structured focus group interviews were conducted with 22 adult users with mental illness. The transcribed interviews were analyzed using a directed content analysis. This method was used to develop an in-depth understanding of the decisional process as well as to validate and conceptually extend Elwyn et al.’s model of SDM.

Results: The model Elwyn et al. have created for SDM in somatic care fits well for mental health services, both in terms of process and content. However, the results also suggest an extension of the model because decisions related to mental illness are often complex and involve a number of life domains. Issues related to social context and individual recovery point to the need for a preparation phase focused on establishing cooperation and mutual understanding as well as a clear follow-up phase that allows for feedback and adjustments to the decision-making process.

Conclusions and Implications for Practice: The current study contributes to a deeper understanding of decisional and information needs among users of community-based mental health services that may reduce barriers to participation in decision-making. The results also shed light on attitudinal, relationship-based, and cognitive factors that are important to consider in adapting SDM in the mental health system.

Place, publisher, year, edition, pages
Järfälla: Co-Action Publishing , 2016. Vol. 11, 30563
Keyword [en]
Shared decision-making, information needs, mental healthcare, directed content analysis
National Category
Nursing Sociology
Identifiers
URN: urn:nbn:se:hh:diva-30524DOI: 10.3402/qhw.v11.30563PubMedID: 27167556OAI: oai:DiVA.org:hh-30524DiVA: diva2:912172
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare
Available from: 2016-03-15 Created: 2016-03-15 Last updated: 2016-05-13Bibliographically approved

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Citation style
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