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Support from healthcare services during transition to adulthood – Experiences of young adult survivors of pediatric cancer
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), Health promotion and disease prevention.ORCID iD: 0000-0003-4438-6673
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), Health promotion and disease prevention. Jönköping University, Jönköping, Sweden.ORCID iD: 0000-0002-5586-3810
Halmstad University, School of Information Technology, Halmstad Embedded and Intelligent Systems Research (EIS), Man and Information technology laboratory (MI-lab).ORCID iD: 0000-0002-2791-6647
Skåne University Hospital, Lund, Sweden.
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2016 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 21, 105-112 p.Article in journal (Refereed) Published
Abstract [en]

Purpose: Improved survival rates of pediatric cancer have drawn attention on how to best facilitate long-term follow up and transition from pediatric to adult care. The transition process is multifactorial and necessitates the joint involvement of the patient, the family and the healthcare providers. The purpose of this study was to explore the experiences of support from healthcare services during the transition from adolescence to adulthood described by young adult survivors of pediatric cancer.

Methods: A mixed method with a convergent parallel design was used to evaluate the experiences of receiving support from healthcare services (eg pediatric oncology and pediatric clinic) during transition from adolescence to adulthood described by young adult survivors of pediatric cancer (n = 213) in a nation wide cross-sectional survey.

Results: A quantitative assessment of the experienced extent and satisfaction of support from healthcare services to handle physical, mental and social changes to continue life after the disease showed that a majority of the participants had received insufficient support. The qualitative analysis indicated a need for equal roles in healthcare to promote participation, a need to manage and process consequences of the disease, and a need for continuous support.

Conclusions: During transition to adulthood, there's a need for a personalized care plan that takes a holistic approach towards supporting the young cancer survivor in managing life in the best way. Identifying and handling the individual needs of pediatric cancer survivors is important for providing the resources and support required to increase the likelihood of successful transition to adulthood. © 2016 Elsevier Ltd.

Place, publisher, year, edition, pages
London: Elsevier, 2016. Vol. 21, 105-112 p.
Keyword [en]
Pediatric, cancer, survivor, experience, transition
National Category
Nursing Cancer and Oncology
Identifiers
URN: urn:nbn:se:hh:diva-30522DOI: 10.1016/j.ejon.2016.02.008PubMedID: 26952685Scopus ID: 2-s2.0-84958775381OAI: oai:DiVA.org:hh-30522DiVA: diva2:912055
Funder
Swedish Research CouncilKnowledge FoundationSwedish Research Council Formas
Note

This study was supported by grants to J.M.N from the Swedish Childhood Cancer Foundation, the Swedish Research Council, the Knowledge Foundation, the Swedish Research Council Formas.

Available from: 2016-03-15 Created: 2016-03-15 Last updated: 2016-03-18Bibliographically approved

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Svedberg, PetraEinberg, Eva-LenaWärnestål, PontusEnskär, KarinNygren, Jens
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CiteExportLink to record
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Citation style
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