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People with Rheumatic Diseases Experiences of Health-Promoting Self-Care
Research and Development Centre, Spenshult hospital for rheumatic diseases, Oskarström, Sweden.ORCID iD: 0000-0001-5647-086X
Research and Development Centre, Spenshult hospital for rheumatic diseases, Oskarström, Sweden.ORCID iD: 0000-0002-6294-538X
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
School of Health Sciences, Jönköping University, Jönköping, Sweden.
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2010 (English)In: Annals of the Rheumatic Diseases, ISSN 0003-4967, E-ISSN 1468-2060, Vol. 69, no Suppl. 3, 743-743 p.Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

Background: People with rheumatic diseases estimate their health status low. The health status and health belief are influencing the choice of self-care behaviours. Self-care behaviours are common and could prevent loss of valued life activities and health. Little is known of how people with rheumatic diseases experience self-care.

Objectives: To describe people with rheumatic diseases experiences of health-promoting self-care.

Methods: The study had a phenomenological approach based on a reflective life-world perspective. Data were gathered by unstructured and open-ended interviews with 12 individuals with various diagnoses of rheumatic diseases.

Results: For people with rheumatic diseases, self-care was a way of life and implied being ready at all times to understand and respond to signals from the lived body. Self-care was experienced as an internal dialogue within the lived body but also as an external dialogue with the immediate environment. Self-care could also be described as a power struggle where the individuals strived and forced themselves to fight the diseases and its concrete consequences. The self-care also required that choices were made. Crucial for the choices were trust in oneself and belief in one's own ability to chosen health-promoting self-care. The individual prioritised self-care that was experienced as a beneficial and/or a reward for the lived body.

Conclusion: People with rheumatic diseases experienced self-care as a way of life and that it meant to be ready at all times to understand and respond to signals that the lived body sends out. Self-care required dialogue, power struggle and choice. This knowledge ads to a fuller understanding of factors that from a patient perspective are important for health when living with a chronic rheumatic disease.

Disclosure of Interest: None declared

Place, publisher, year, edition, pages
London: BMJ Books, 2010. Vol. 69, no Suppl. 3, 743-743 p.
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hh:diva-28590OAI: oai:DiVA.org:hh-28590DiVA: diva2:822183
Conference
EULAR (European League Against Rheumatism), Rome, Italy, 16-19 June, 2010
Available from: 2015-06-16 Created: 2015-06-16 Last updated: 2016-10-21Bibliographically approved

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