People with Rheumatic Diseases Experiences of Health-Promoting Self-CareShow others and affiliations
2010 (English)In: Annals of the Rheumatic Diseases, ISSN 0003-4967, E-ISSN 1468-2060, Vol. 69, no Suppl. 3, p. 743-743Article in journal, Meeting abstract (Refereed) Published
Abstract [en]
Background: People with rheumatic diseases estimate their health status low. The health status and health belief are influencing the choice of self-care behaviours. Self-care behaviours are common and could prevent loss of valued life activities and health. Little is known of how people with rheumatic diseases experience self-care.
Objectives: To describe people with rheumatic diseases experiences of health-promoting self-care.
Methods: The study had a phenomenological approach based on a reflective life-world perspective. Data were gathered by unstructured and open-ended interviews with 12 individuals with various diagnoses of rheumatic diseases.
Results: For people with rheumatic diseases, self-care was a way of life and implied being ready at all times to understand and respond to signals from the lived body. Self-care was experienced as an internal dialogue within the lived body but also as an external dialogue with the immediate environment. Self-care could also be described as a power struggle where the individuals strived and forced themselves to fight the diseases and its concrete consequences. The self-care also required that choices were made. Crucial for the choices were trust in oneself and belief in one's own ability to chosen health-promoting self-care. The individual prioritised self-care that was experienced as a beneficial and/or a reward for the lived body.
Conclusion: People with rheumatic diseases experienced self-care as a way of life and that it meant to be ready at all times to understand and respond to signals that the lived body sends out. Self-care required dialogue, power struggle and choice. This knowledge ads to a fuller understanding of factors that from a patient perspective are important for health when living with a chronic rheumatic disease.
Disclosure of Interest: None declared
Place, publisher, year, edition, pages
London: BMJ Books, 2010. Vol. 69, no Suppl. 3, p. 743-743
National Category
Health Sciences Biological Sciences
Identifiers
URN: urn:nbn:se:hh:diva-28590OAI: oai:DiVA.org:hh-28590DiVA, id: diva2:822183
Conference
EULAR (European League Against Rheumatism), Rome, Italy, 16-19 June, 2010
2015-06-162015-06-162022-09-13Bibliographically approved