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Self-advocacy: organization and resistance in Sweden
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), The Wigforss Group.ORCID iD: 0000-0002-7519-6488
2015 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Aim: In the last decade, young adults with intellectual disability (ID) have begun to self-organize in order to increase power over their own lives and remove barriers to their social participation in society. This study aimed to further understand the new forms of self-advocacy in Sweden by describing and analyzing 1) the characteristics and organization of the movement and its activities; 2) the influence of membership on self-identity, self-determination, social relationships and daily life; and 3) the influence of the movement on social attitudes and services to people with ID. Method: A national mapping exercise identified more than 60 self- advocacy groups. Case studies of four organizations, selected to reflect organizational diversity, were conducted using interviews, focus-groups, observations and document review. Results: Despite variability in organizational form and size, self-advocacy groups have an important impact on the lives of their members and have mounted resistance to society’s views and treatment of people with ID and the traditional ways of delivering services. Conclusion: The new self-advocacy movement in Sweden is beginning to influence the way Swedish society regards people with ID, and reshape support services to enable greater service user control.

Place, publisher, year, edition, pages
2015.
Keyword [en]
Intellectual disability, self-advocacy, organization, resistance
National Category
Social Sciences Interdisciplinary
Identifiers
URN: urn:nbn:se:hh:diva-28357OAI: oai:DiVA.org:hh-28357DiVA: diva2:815043
Conference
The 2015 IASSIDD Americas Regional Congress, "Inclusive Boundaries", 21-22 May 2015, Honolulu, Hawaii
Available from: 2015-05-29 Created: 2015-05-29 Last updated: 2016-11-30Bibliographically approved

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CiteExportLink to record
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Cite
Citation style
  • apa
  • ieee
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  • vancouver
  • Other style
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Language
  • de-DE
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  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
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