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Young people with intellectual disability – The role of self-advocacy in a transformed Swedish welfare system
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), The Wigforss Group. La Trobe University, Melbourne, Australia.ORCID iD: 0000-0002-7519-6488
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), The Wigforss Group.
2015 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 10, 25100Article in journal (Refereed) Published
Abstract [en]

A growing number of young people in Sweden with intellectual disability have organized themselves during the last 15 years in self-advocacy groups for socializing, empowerment, and expressing opposition to the norms and attitudes in a society that labels them as disabled. At the same time, the Swedish welfare system has transformed dramatically with processes of far-reaching individualization, closure of the major institutions, decentralization of responsibility from the state to local governments, and an emerging welfare market where service users are turned into customers. The aim of this article is to analyse and discuss the significance of self-advocacy in the new welfare context. Data were collected over a period of more than 10 years using repeated interviews with members of two self-advocacy groups and participation observations. Findings suggest that participation in self-advocacy groups opens up members for increasing health and well-being through new roles and identities, and it strengthens their control over everyday life. Support is still needed, however, but in new ways; otherwise, the restrictions of the institutions will simply be reconstructed in the new welfare system.

Place, publisher, year, edition, pages
Järfälla: Co-Action Publishing , 2015. Vol. 10, 25100
Keyword [en]
Self-advocacy, intellectual disability, welfare system, empowerment
National Category
Social Sciences Interdisciplinary
Identifiers
URN: urn:nbn:se:hh:diva-28071DOI: 10.3402/qhw.v10.25100ISI: 000352425500001PubMedID: 25819844Scopus ID: 2-s2.0-84926173977OAI: oai:DiVA.org:hh-28071DiVA: diva2:801213
Available from: 2015-04-08 Created: 2015-04-08 Last updated: 2017-12-04Bibliographically approved

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Tideman, Magnus

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