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Ethics in Health Promoting PD: Designing Digital Peer Support with Children Cured from Cancer
Halmstad University, School of Information Technology, Halmstad Embedded and Intelligent Systems Research (EIS). (The CHIPS Study Group)ORCID iD: 0000-0002-8596-2027
Halmstad University, School of Information Technology, Halmstad Embedded and Intelligent Systems Research (EIS), Man and Information technology laboratory (MI-lab).ORCID iD: 0000-0002-8463-4486
Halmstad University, School of Information Technology, Halmstad Embedded and Intelligent Systems Research (EIS), Man and Information technology laboratory (MI-lab).ORCID iD: 0000-0001-9439-0764
2014 (English)In: PDC 2014: Reflecting connectedness: Proceedings of the 13th Participatory Design Conference: Volume 1: Research Papers / [ed] Ole Sejer Iversen, Heike Winschiers-Theophilus, Vincenzo D'Andrea, Andrew Clement, Andrea Botero, Keld Bødker, New York, NY: ACM Press, 2014, p. 91-100Conference paper, Published paper (Refereed)
Abstract [en]

Innovative design targets new user groups and application areas. One example is health promoting digital services. In such design contexts it is essential to take social and ethical challenges into consideration. In this paper we report from an on-going design research project aimed at designing digital peer support (DPS) for children cured from cancer. Peer support can meet the children’s imperative need for social support. However, the design context is sensitive and gives rise to ethical challenges and considerations. We illustrate how participatory design (PD) activities can be designed to handle ethical challenges when designing for and with children. We present lessons learned, including using familiar activities, using personas and including healthy children when possible. Further, we reflect on the need to proactively design an ethical perspective into the entire design process, introducing the concept Ethics in Design. Copyright 2014 ACM.

Place, publisher, year, edition, pages
New York, NY: ACM Press, 2014. p. 91-100
Series
PDC, ISSN 2150-5896
Keyword [en]
Participatory design, design activities, digital peer support, children, ethics, ethics in design, health promoting
National Category
Information Systems Information Systems, Social aspects
Identifiers
URN: urn:nbn:se:hh:diva-27129DOI: 10.1145/2661435.2661449Scopus ID: 2-s2.0-85011695354ISBN: 978-1-4503-2256-0 (print)OAI: oai:DiVA.org:hh-27129DiVA: diva2:766316
Conference
13th Participatory Design Conference (PDC), Windhoek, Namibia, October 6-10, 2014
Projects
CHIPS
Funder
Swedish Research CouncilSwedish Research Council FormasKnowledge FoundationVINNOVA
Note

Funding, additional: Swedish Childhood Cancer Society

Available from: 2014-11-26 Created: 2014-11-26 Last updated: 2018-01-11Bibliographically approved

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Thomsen, MichelÅkesson, Maria

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