hh.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Spouses’ reflections on Implantable Cardioverter Defibrillator treatment with focus on the future and the end-of-life: a qualitative content analysis
Department of Cardiology UHL, County Council of Östergötland, Linköping, Sweden.
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), Health promotion and disease prevention.
Division of Nursing Sciences, Department of Medicine and Health Sciences, Faculty of Health Sciences, Linköping University, Sweden.
Division of Nursing Sciences, Department of Medicine and Health Sciences, Faculty of Health Sciences, Linköping University, Sweden.
2014 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 70, no 8, 1758-1769 p.Article in journal (Refereed) Published
Abstract [en]

Aim. To explore future reflections of spouses living with an implantable cardioverter defibrillator recipient with focus on the end-of-life phase in an anticipated palliative phase.

Background. A history of or risk for life-threatening arrhythmias may require an implantable cardioverter defibrillator. Despite the life-saving capacity of the device, eventually life will come to an end. As discussion about preferences of shock therapy at end-of-life phase seldom takes place in advance, the implantable cardioverter defibrillator recipients may face defibrillating shocks in the final weeks of their lives, adding to stress and anxiety in patients and their families.

Design. Qualitative study with in-depth interviews analysed with a content analysis.

Methods. Interviews were performed with 18 spouses of medically stable implantable cardioverter defibrillator recipients during 2011–2012.

Results. The spouses described how they dealt with changes in life and an uncertain future following the implantable cardioverter defibrillator implantation. Six subcategories conceptualized the spouses' concerns: Aspiring for involvement; Managing an altered relationship; Being attentive to warning signs; Worries for deterioration in the partner's health; Waiting for the defibrillating shock; and Death is veiled in silence.

Conclusion. Despite the partner's serious state of health; terminal illness or death and the role of the device was seldom discussed with healthcare professionals or the implantable cardioverter defibrillator recipient. Open and honest communication was requested as important to support coping with an unpredictable life situation and to reduce worries and uncertainty about the future and end-of-life. © 2013 John Wiley & Sons Ltd.

Place, publisher, year, edition, pages
Chichester, West Sussex: Wiley-Blackwell, 2014. Vol. 70, no 8, 1758-1769 p.
Keyword [en]
concerns, deactivation, decision-making, end-of-life, generator replacement, implantable cardioverter defibrillator, nursing, spousal perspective, support
National Category
Other Medical Sciences not elsewhere specified
Identifiers
URN: urn:nbn:se:hh:diva-24346DOI: 10.1111/jan.12330ISI: 000339492500008PubMedID: 24321029Scopus ID: 2-s2.0-84904649021OAI: oai:DiVA.org:hh-24346DiVA: diva2:686011
Note

This study was funded with grants from the Medical Research Council of Southeast Sweden (FORSS) and the Carldavid Jönsson’s Foundation.

Available from: 2014-01-10 Created: 2014-01-10 Last updated: 2015-02-05Bibliographically approved

Open Access in DiVA

No full text

Other links

Publisher's full textPubMedScopus

Search in DiVA

By author/editor
Bolse, Kärstin
By organisation
Health promotion and disease prevention
In the same journal
Journal of Advanced Nursing
Other Medical Sciences not elsewhere specified

Search outside of DiVA

GoogleGoogle Scholar

Altmetric score

Total: 143 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf