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Att vårda ett barn i livets slutskede: Sjuksköterskors erfarenheter
Halmstad University, School of Social and Health Sciences (HOS).
Halmstad University, School of Social and Health Sciences (HOS).
2013 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
Abstract [sv]

Vid palliativ vård av barn är det viktigt att besittakunskap inom både palliativ vård och barn då det är en komplex situation. Tidigare forskning har visat på svårigheter och kunskapsluckor inom den palliativa barnsjukvården. Syftet med studien var att belysa sjuksköterskors erfarenheter av att vårda barn i ett palliativt skede. En litteraturstudie genomfördes, där tio artiklar granskades, bearbetades och analyserades. Artiklarnas resultat kategoriserades i fyra grupper: erfarenhet av stöd och relation, erfarenhet av vårdorganisation, erfarenhet av den professionella rollen samt erfarenhet av förändring utav behandling. Sjuksköterskorna upplevde att stöd var centralt vid palliativ vård av barn. De tar upp att både stödet från organisationen, mellan kollegor samt stödet till familjen var avgörande för god palliativ vård. Relationen var även central i all palliativ vård av barn då hela familjen var i fokus. I denna nära relation upplevde sjuksköterskorna att det var svårt att behålla de professionella gränserna. Palliativ vård av barn är ett nytt forskningsområde. I framtiden bör forskningen fokusera på att undersöka mer specifika förhållanden som till exempel stöd. En annan aspekt är att organisationen ger sjuksköterskorna möjlighet att ta till sig den forskning som finns inom området för att förbättra vården. Förbättrad utbildning och möjlighet till vidareutbildning inom palliativ vård av barn för sjuksköterskorna är av stor vikt. 

Abstract [en]

In palliative care of children it is important to have knowledge of both palliative care and children as it is a complex situation. Previous research has shown difficulties and knowledge gaps in the pediatric palliative care. The aim of the study was to illustrate nurses’ experiences of caring for children in the end-of-life. A literature study was conducted, where ten articles were reviewed, processed and analyzed. The results of the articles were categorized into four groups: experience of support and relationship, experience of the care organization, experience of the professional role and experience of change in treatment. The nurses experienced that support had a central role in pediatric palliative care. They address the support from the organization, between colleagues as well as the support to the child’s family as significant for good palliative care. The relationship was central in all pediatric palliative care as the whole family was involved. In this close relationship the nurses had difficulties maintaining the professional boundaries. Pediatric palliative care is a new research field. In the future research should focus on specific conditions such as support. Another aspect is that the organization gives nurses the opportunity to take part of this research to improve the care. Improved education and the possibility to get education in palliative care of children for the nurses are of great importance.

Place, publisher, year, edition, pages
2013. , 17 p.
Keyword [en]
Child, Nurses’ experiences, Palliative care, Professional boundaries, Support
Keyword [sv]
Barn, Palliativ vård, Professionella gränser, Sjuksköterskors erfarenheter, Stöd
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-24187OAI: oai:DiVA.org:hh-24187DiVA: diva2:680129
Subject / course
Nursing
Supervisors
Examiners
Available from: 2014-01-09 Created: 2013-12-17 Last updated: 2014-01-09Bibliographically approved

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Kandidatuppsats Emma och Alexandra(420 kB)169 downloads
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Type fulltextMimetype application/pdf

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Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
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More styles
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  • sv-SE
  • Other locale
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