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Young Adult Cancer Survivor's Experiences of Psychosocial Rehabilitation
Skåne University Hospital, Lund, Sweden.
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI). (Hälsoinnovationer för barns psykiska hälsa)ORCID iD: 0000-0002-3576-2393
2012 (English)In: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 59, no 6, Special Issue: SI, 1122-1122 p.Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

Purpose: The objective of this study was to establish innovation incentives based on young adult cancer survivor’s experiences of psychosocial rehabilitation following their treatment.

Methods: Eligibility for the study cohort included diagnosis and treatment for paediatric acute lymphoblastic leukemia in Sweden prior to age 15 years between 1985 and 1997 and survival for at least 10 years (n = 416). A brief questionnaire including both closed and open questions were sent out by mail to all eligible subjects still living in Sweden and with a valid address in the population register (n = 374). Responses (n = 213, 57%) were analysed by descriptive statistics and qualitative content analysis.

Results: Only a few of the survivors in the cohort had maintained contact with their paediatric oncology clinic (n = 30, 14%). However, continuation of regular clinical check-ups related to cancer treatment (n = 61, 28%) were more common. Of those who had no contact with health services, 61% were satisfied and 39% dissatisfied with the contact being terminated. A majority of survivors reported that they did not have experience of psychosocial rehabilitation focused on knowledge formation (58%), strategies for action (66%), or support (58%) to continue life the best way possible.

Conclusion: This study highlights the potential for innovative resources for psychosocial rehabilitation during adolescence and the importance of supporting children’s and young adult’s initiatives to re-establishing contact with health care related to psychosocial rehabilitation. The school nurse can play a significant role in communication of such resources due to their proximity to children’s daily life post treatment.

Place, publisher, year, edition, pages
Hoboken: John Wiley & Sons, 2012. Vol. 59, no 6, Special Issue: SI, 1122-1122 p.
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:hh:diva-21290DOI: 10.1002/pbc.24295ISI: 000309754300645OAI: oai:DiVA.org:hh-21290DiVA: diva2:600338
Conference
44th Congress of the International Society of Paediatric Oncology (SIOP) 2012, Barbican Centre, London, United Kingdom, 5-8 October, 2012
Note

Abstract PS010

Available from: 2013-01-24 Created: 2013-01-24 Last updated: 2017-04-25Bibliographically approved

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CiteExportLink to record
Permanent link

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Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
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  • nn-NB
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Output format
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