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Time in everyday life as experienced by next of kin of haemodialysis patients
Halmstad University, School of Social and Health Sciences (HOS), Centre of Research on Welfare, Health and Sport (CVHI).
Halmstad University, School of Social and Health Sciences (HOS), Centre of Research on Welfare, Health and Sport (CVHI).
Halmstad University, School of Social and Health Sciences (HOS), Centre of Research on Welfare, Health and Sport (CVHI).
(English)Manuscript (preprint) (Other academic)
Abstract [en]

Aim The aim of this study was to explore the content of time in everyday life as experienced by the next of kin of haemodialysis patients.

Background Chronic renal disease often requires haemodialysis which is a time-consuming treatment that necessitates careful planning of everyday life and involves next of kin to a large degree. Next of kin's time can be severely restricted when his/her life is devoted to the needs of the haemodialysis patient.

Method This study used explorative and descriptive design with a qualitative content analysis approach. Twenty next of kin selected purposive with the criterion of having at least one year of experience as a next of kin of a patient on haemodialysis.

Results Analysis of data from the interviews revealed experiences of time in everyday lives of the next of kin of haemodialysis patients. Their experiences were reflected in the concepts fragmented time, vacuous time and uninterrupted time.

Conclusion The experience of time in the everyday lives of next of kin of haemodialysis patients demonstrated that time for themselves was minimised and that common life space contracted. The next of kin were also aware of the prognosis of renal disease and the fact that haemodialysis was a life-sustaining treatment, which forced them to live in the present. They afforded wellness when they experienced a break from everyday live and could use their time for their own needs. Attention should be focused on time in the nurse's assessment of the next of kin's everyday life and whether or not next of kin have sufficient time required for the patient's care. There is need for further research that focuses on a generalisation of the fmdings by means of the development of instruments that can contribute assessment of time in everyday life among next of kin of chronically ill patients.

Keyword [en]
Time, everyday life, next of kin, haemodialysis patients, content analysis
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hh:diva-20108OAI: oai:DiVA.org:hh-20108DiVA: diva2:576857
Available from: 2012-12-14 Created: 2012-12-14 Last updated: 2012-12-14Bibliographically approved
In thesis
1. Everyday Life among Next of Kin of Haemodialysis Patients
Open this publication in new window or tab >>Everyday Life among Next of Kin of Haemodialysis Patients
2005 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Everyday life can be complex when next of kin of haemodialysis patients are preoccupied with taking care of the patient and his/her health, which implies the difficulties and requirements needed. The general aim of this thesis was to explore and describe everyday life among next of kin of haemodialysis patients with focus on the life situation, health, time and professional support. Two perspectives of the thesis was applied: a holistic perspective on the everyday life of next of haemodialysis patient and a social perspective with focus on human communication and understanding of next of kin’s experience of everyday life. A qualitative descriptive and explorative design, comprising a phenomenographic and content analysis was used in Studies I-IV. The data collected in the studies consisted of interviews with next of kin to haemodialysis patient and analysis of professional support for next of kin to chronic haemodialysis patients in nursing documentation from two hospitals in Sweden. The experience of time in everyday life among next of kin of haemodialysis patients demonstrated that time for them is minimised and life space contracted. Next of kin experienced ambivalence towards their own health, especially in cases of patients’ spouses When next of kin of haemodialysis patient’s became involved in the patients’ care, they experienced arduousness in relation to their own health as well as less uninterrupted time for themselves in everyday life, and their life situation was characterised by confinement and social isolation. They were aware of the prognosis of renal disease and the fact that haemodialysis is a life-sustaining treatment, which forced them to live for the moment. The everyday life among the next of kin changed when the family became involved in the care, which in turn lead to a changed life situation and restrictions in everyday life. Lack of knowledge in nursing documentation of professional support revealed necessity of the readiness of next of kin. It is therefore important to be familiar with this in the nursing process, especially when the patient and their next of kin need support and attention in everyday life.

Original papers not included.

Place, publisher, year, edition, pages
Linköping: Dept. of Medicine and Care, Linköping University, 2005. 58 p.
Series
Medical dissertation, ISSN 0345-0082 ; 926
Keyword
Next of kin, Haemodialysis, Everyday life, Health, Time, Life situation, Professional support, Nursing process, Qualitativ analysis
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hh:diva-521 (URN)2082/862 (Local ID)91-85497-65-7 (ISBN)2082/862 (Archive number)2082/862 (OAI)
Public defence
2005-12-15, Ekensalen, Hälsouniversitetet, Linköping, 13:00 (Swedish)
Opponent
Note

Linköping University Medical Dissertation, 926, I. Ziegert K. & Fridlund B. Conceptions of life situation among next of kin of haemodialysis patients. Journal of Nursing Management 2001; (9) 231-239. doi:10.1046/j.1365-2834.2001.00233.x, II. Ziegert K., Fridlund B. & Lidell E. Health in everyday life among spouses of patients on haemodialysis; a content analysis. Scandinavian Journal of Caring Sciences, Volume 20, Number 2, June 2006, pp. 223-228(6). DOI: 10.1111/j.1471-6712.2006.00400.x, III. Ziegert K., Fridlund B. & Lidell E. Time in everyday life as experienced by next of kin of haemodialysis patients (Submitted for publication)., IV. Ziegert K., Fridlund B. & Lidell E. Professional support for next of kin of patients receiving chronic haemodialysis treatment. A content analysis study of nursing documentation. Journal of Clinical Nursing, Volume 16, Number 2, February 2007, pp. 353-361(9). DOI: 10.1111/j.1365-2702.2006.01597.x,

Available from: 2007-02-15 Created: 2007-02-15 Last updated: 2012-12-14Bibliographically approved

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