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Spouses' experiences of impact on daily life regarding physical limitations in the loved one with heart failure: A phenomenographic analysis
Halmstad University, School of Social and Health Sciences (HOS), Centre of Research on Welfare, Health and Sport (CVHI).
Halmstad University, School of Social and Health Sciences (HOS), Centre of Research on Welfare, Health and Sport (CVHI).
Halmstad University, School of Social and Health Sciences (HOS), Centre of Research on Welfare, Health and Sport (CVHI).
2010 (English)In: Canadian Journal of Cardiovascular Nursing, ISSN 0843-6096, Vol. 20, no 3, 9-17 p.Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Physical limitation is a great burden for patients with heart failure, but little is known about how that affects spouses. Beneficial effects of support on the prognosis for the patient with chronic heart failure may come at a psychological and physical cost to the person providing the support. PURPOSE: The aim of this study was to explore and describe how spouses conceive the physical limitations in patients with heart failure and the impact these limitations have on the daily life of the spouse. DESIGN: A qualitative design with a phenomenographic approach was chosen for the study. FINDINGS: The informants were 15 spouses of heart failure patients. The spouses perceived a variety of aspects pertaining to how they conceive the physical limitations in the loved one with heart failure and the implication this had on their daily life. The referential aspects were: Losing self-containment, Missing communality, Accommodating to the situation and Finding satisfaction in life. IMPLICATIONS AND CONCLUSIONS: Awareness must be raised among health care professionals about the profound impact heart failure in loved ones has on the spouses and explore how the spouses' needs can be appropriately met. Since spouses have an important role to play in the management of heart failure, it is of great importance that nurses identify and support spouses to manage daily life activities. Taking care of the good days in order to have a rich life and to help spouses see possibilities is necessary since it is difficult to predict the future.

Place, publisher, year, edition, pages
Ottawa: Canadian Council of Cardiovascular Nurses , 2010. Vol. 20, no 3, 9-17 p.
Keyword [en]
adaptive behavior, aged, article, attitude to health, chronic disease, cost of illness, daily life activity, female, heart failure, home care, human, male, needs assessment, nurse attitude, nursing assessment, nursing methodology research, psychological aspect, qualitative research, quality of life, questionnaire, satisfaction, social support, spouse, Sweden
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hh:diva-16232PubMedID: 20718235Scopus ID: 2-s2.0-77956629429OAI: oai:DiVA.org:hh-16232DiVA: diva2:441052
Projects
Ingår i avhandling: Pihl, Emma. The Couples' Experiences of Patients' Physical Limitation in Daily Life Activities and Effects of Physical Exercise in Primary Care when having Chronic Heart Failure. 2010.
Available from: 2011-09-14 Created: 2011-09-14 Last updated: 2012-12-14Bibliographically approved
In thesis
1. The Couples' Experiences of Patients' Physical Limitation in Daily Life Activities and Effects of Physical Exercise in Primary Care when having Chronic Heart Failure
Open this publication in new window or tab >>The Couples' Experiences of Patients' Physical Limitation in Daily Life Activities and Effects of Physical Exercise in Primary Care when having Chronic Heart Failure
2010 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The aim of this thesis was to explore and describe couples’ experiences of patients’ physical limitation in activities of daily life and evaluate the effects of an exercise programme in primary care when having chronic heart failure (CHF). In Study I, a comparison between patients with CHF and their spouses was made regarding health-related quality of life and depression. Inthe thesis a comparison was also made between patients, spouses and specific age and gender matched norms. There were statistically significant differences in health-related quality of life between patients and spouses as well as between patients and their norms as in SF-36 scores. The deteriorated health-related quality of life in patients was most present in the physical component but also in social function in the mental component. There were no differences between patients and spouses in depression symptoms. In Study II, patients with CHF described their conceptions of physical limitation in daily life activities. A phenomenographic approach made it possible to identify variations of the conceptions and the referential aspects that emerged were: need of finding practical solutions in daily life, having realistic expectations about the future, not believing in one’s own ability and losing one’s social role in daily life. In Study III, spouses’ conceptions about the physical limitation in daily life activities in a loved one with CHF andthe impact these limitations had on their daily life were examined. The phenomenographic approach resulted in different referential aspects. These were: losing self-containment, missing communality, accommodating to the situation and finding satisfaction in life. Study IV aimed at determining effects of an exercise programme in primary care in elderly patients with CHF. The intervention period was 12 months with continuous exercise in the primary care centre and in the patients’ homes. Tests of physical capacity showed significant consistent improvement in the exercise group in arms and shoulders during the intervention and in the 6 minute walk test at 3 months compared to the control group. The physical dimension of Minnesota living with heart failure was significantly improved at 3 months and Euroqol5DVAS was significantly improved at 3 and 12 months in the exercise group compared to the control group. The thesis shows that patients and spouses conceive a variety of issues of physical limitation in daily life and the physical component of health-related quality of life is the most affected. The physical capacity in patients is possible to affect with an exercise programme in primary care and patient homes. The exercise programme is beneficial interms of physical capacity in the upper body and walked distance in 6 minutes.

Place, publisher, year, edition, pages
Jönköping: School of Health Sciences, 2010. 122 p.
Series
Dissertation Series. School of Health Sciences, ISSN 1654-3602 ; 12
National Category
Nursing
Identifiers
urn:nbn:se:hh:diva-16235 (URN)978-91-85835-11-9 (ISBN)
Public defence
2010-10-22, R4312, Halmstad Högskola, Halmstad, 11:51 (Swedish)
Opponent
Supervisors
Available from: 2011-09-14 Created: 2011-09-14 Last updated: 2012-12-14Bibliographically approved

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Citation style
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