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Patients' perceptions of self-determination as expressed in the context of care
Halmstad University, School of Social and Health Sciences (HOS).
Halmstad University, School of Social and Health Sciences (HOS).
2001 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 35, no 1, p. 117-125Article in journal (Refereed) Published
Abstract [en]

Aim

The aim of this study was to describe patients' perceptions of how self-determination finds expression in the context of care.

Background

Self-determination is an important concept within health care as well as an important patient right. New legislation on patient rights in Sweden and Europe is aimed at increased patient self-determination.

Design and method

Data were collected through semi-structured, tape-recorded interviews with 17 strategically chosen patients within somatic care and analysed using a method inspired by phenomenography.

Results

The analysis found three descriptive categories of the informants' perceptions: trusting, accepting and a feeling of powerlessness. The patients expressed a great sense of trust and confidence in the care provided and they accepted the health care procedures. At the same time, they expressed a feeling of powerlessness because of not being part of decision-making, as well as lacking knowledge and information about treatment strategies. The patients wished to have the right of more self-determination but lacked the strength and knowledge to be able to influence their own care.

Conclusions

Patients' perceptions of self-determination suggest that, in their encounters with the professional care, knowledge is expressed as power. The feeling of a lack of self-determination can be reduced by help and support from a nurse who allocates time for communication in order to learn the patient's needs and reach a mutual understanding.

Place, publisher, year, edition, pages
Oxford: Blackwell Scientific , 2001. Vol. 35, no 1, p. 117-125
Keywords [en]
Autonomy, Communication, Knowledge, Patients, Perceptions, Rights, Phenomenography, Power, professional, Qualitative method, Self-determination
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hh:diva-3479DOI: 10.1046/j.1365-2648.2001.01828.xISI: 000169888100021PubMedID: 11442689Scopus ID: 2-s2.0-0035403785OAI: oai:DiVA.org:hh-3479DiVA, id: diva2:293047
Available from: 2010-02-10 Created: 2009-12-01 Last updated: 2017-12-12Bibliographically approved

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf