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Conceptions of life situation among next-of-kin of haemodialysis patients
Halmstad University, School of Social and Health Sciences (HOS), Centre of Research on Welfare, Health and Sport (CVHI). Department of Medicine, Central Hospital Halmstad, S-301 85 Halmstad, Sweden.
Halmstad University, School of Social and Health Sciences (HOS), Centre of Research on Welfare, Health and Sport (CVHI). Department of Medicine, Linköping University, Linköping, Sweden .
2001 (English)In: Journal of Nursing Management, ISSN 0966-0429, E-ISSN 1365-2834, Vol. 9, no 4, p. 231-239Article in journal (Refereed) Published
Abstract [en]

The presence of renal disease in a family is a strain on both the patient and the next-of-kin, affecting their life situations. Surprisingly, few studies dealing with the ways that the next-of-kin experience their situation are available. The aim of this study was to describe how the next-of-kin of haemodialysis patients conceive their life situation. Data were collected by interviewing 12 people who live with someone with dialysis-treated renal disease and analysed according to a qualitative method inspired by the phenomenographic approach. Six description categories of how the subjects construed their life situation emerged: a feeling of confinement; a feeling of social isolation; a feeling that the way of life has changed; a feeling of security in life; a feeling of a threatening future; and promoting health. The next-of-kin generally expressed a large degree of commitment to and concern for the sick person. In spite of their life situation having been dramatically changed, the next-of-kin described an ability to adapt. With the help of society the feelings of confinement and social isolation can be dispersed, enabling the next-of-kin to promote the health of the sick person. A suggestion for further research is to study what adaptation strategies next-of-kin use in their life situation.

Place, publisher, year, edition, pages
Chichester, United Kingdom: Wiley-Blackwell, 2001. Vol. 9, no 4, p. 231-239
Keywords [en]
Haemodialysis, Next-of-kin
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
URN: urn:nbn:se:hh:diva-2027DOI: 10.1046/j.1365-2834.2001.00233.xPubMedID: 11472513Scopus ID: 2-s2.0-0035406423Local ID: 2082/2422OAI: oai:DiVA.org:hh-2027DiVA, id: diva2:239245
Available from: 2008-10-09 Created: 2008-10-09 Last updated: 2018-03-23Bibliographically approved
In thesis
1. Everyday Life among Next of Kin of Haemodialysis Patients
Open this publication in new window or tab >>Everyday Life among Next of Kin of Haemodialysis Patients
2005 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Everyday life can be complex when next of kin of haemodialysis patients are preoccupied with taking care of the patient and his/her health, which implies the difficulties and requirements needed. The general aim of this thesis was to explore and describe everyday life among next of kin of haemodialysis patients with focus on the life situation, health, time and professional support. Two perspectives of the thesis was applied: a holistic perspective on the everyday life of next of haemodialysis patient and a social perspective with focus on human communication and understanding of next of kin’s experience of everyday life. A qualitative descriptive and explorative design, comprising a phenomenographic and content analysis was used in Studies I-IV. The data collected in the studies consisted of interviews with next of kin to haemodialysis patient and analysis of professional support for next of kin to chronic haemodialysis patients in nursing documentation from two hospitals in Sweden. The experience of time in everyday life among next of kin of haemodialysis patients demonstrated that time for them is minimised and life space contracted. Next of kin experienced ambivalence towards their own health, especially in cases of patients’ spouses When next of kin of haemodialysis patient’s became involved in the patients’ care, they experienced arduousness in relation to their own health as well as less uninterrupted time for themselves in everyday life, and their life situation was characterised by confinement and social isolation. They were aware of the prognosis of renal disease and the fact that haemodialysis is a life-sustaining treatment, which forced them to live for the moment. The everyday life among the next of kin changed when the family became involved in the care, which in turn lead to a changed life situation and restrictions in everyday life. Lack of knowledge in nursing documentation of professional support revealed necessity of the readiness of next of kin. It is therefore important to be familiar with this in the nursing process, especially when the patient and their next of kin need support and attention in everyday life.

Original papers not included.

Place, publisher, year, edition, pages
Linköping: Dept. of Medicine and Care, Linköping University, 2005. p. 58
Series
Medical dissertation, ISSN 0345-0082 ; 926
Keywords
Next of kin, Haemodialysis, Everyday life, Health, Time, Life situation, Professional support, Nursing process, Qualitativ analysis
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hh:diva-521 (URN)2082/862 (Local ID)91-85497-65-7 (ISBN)2082/862 (Archive number)2082/862 (OAI)
Public defence
2005-12-15, Ekensalen, Hälsouniversitetet, Linköping, 13:00 (Swedish)
Opponent
Note

Linköping University Medical Dissertation, 926, I. Ziegert K. & Fridlund B. Conceptions of life situation among next of kin of haemodialysis patients. Journal of Nursing Management 2001; (9) 231-239. doi:10.1046/j.1365-2834.2001.00233.x, II. Ziegert K., Fridlund B. & Lidell E. Health in everyday life among spouses of patients on haemodialysis; a content analysis. Scandinavian Journal of Caring Sciences, Volume 20, Number 2, June 2006, pp. 223-228(6). DOI: 10.1111/j.1471-6712.2006.00400.x, III. Ziegert K., Fridlund B. & Lidell E. Time in everyday life as experienced by next of kin of haemodialysis patients (Submitted for publication)., IV. Ziegert K., Fridlund B. & Lidell E. Professional support for next of kin of patients receiving chronic haemodialysis treatment. A content analysis study of nursing documentation. Journal of Clinical Nursing, Volume 16, Number 2, February 2007, pp. 353-361(9). DOI: 10.1111/j.1365-2702.2006.01597.x,

Available from: 2007-02-15 Created: 2007-02-15 Last updated: 2018-03-23Bibliographically approved

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Ziegert, KristinaFridlund, Bengt

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