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Health-related quality of life in recipients with an implantable cardioverter defibrillator due to life-threatening arrhythmias: a 5 year follow-up
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
2004 (English)Licentiate thesis, comprehensive summary (Other academic)
Abstract [en]

The general aim of this thesis was to describe self-reported health-related quality of life (HRQoL) in recipients with an implantable cardioverter defibrillator (ICD) due to life-threatening arrhythmias over a S-year period. The design was prospective and longitudinal. Fifty-six patients participated in Paper I, and 35 of these patients, who had survived at least five years, were included in Paper II. All patients had received their ICD as a form of secondary prevention. The Quality of Life Index-Cardiac version (QLI-C), Mishel Uncertainty in Illness Scale-Community version (MUIS-C), and multiple regression analysis were used. Higher scores indicate higher HRQoL and uncertainty. The questionnaires were completed on four occasions: before implantation, at three months and at 1 year and 5 years after implantation. ICD recipients were also asked how many shocks they had perceived. At the S-year data collection, the  average ICD recipient had lived with an ICD for 6 years and 9 months. In general, HRQoL was lower at year 1 than at baseline (p : 0.033). A decrease in the socioeconomic domain was observed at year 1 (p : 0.006) but improved again at year 5 (p : 0.027) although it remained below the baseline value, ICD recipients' satisfaction with the family domain decreased from the time of the ICD implantation (p < 0.001) and from year I (p : 0.039) to year 5 after implantation. Uncertainty related to information had  decreased at year 1 in relation to baseline (p < 0.001). A decrease in overall uncertainty was observed at year 5 in relation to year 1 (p : 0.009) as well as at year 5 in relation to baseline (p : 0.009). The longer the ICD recipient had lived with the device, the greatil the risk of receiving a shock. However, ICD recipients who  received shocks reported being less troubled by them over time. Uncertainty was identified as a predictor of low HRQoL. The recipients reported a higher level of HRQoL at year 5 than at year 1. HRQoL was reasonably good 5 years after implantation, and the ICD recipients felt more secure and perceived their ICD as a lifesaver.

Place, publisher, year, edition, pages
Linköping: Linköping University , 2004. , p. 52
Series
Linköping studies in health sciences. Thesis, ISSN 1100-6013 ; 67
Keywords [en]
defibrillators implantable, ICD shocks, life-threatening arrhythmia, Quality of life, satisfaction, uncertainty
National Category
Dentistry
Identifiers
URN: urn:nbn:se:hh:diva-601Libris ID: 9837732Local ID: 2082/943ISBN: 91-7373-844-1 OAI: oai:DiVA.org:hh-601DiVA, id: diva2:237781
Note

Ingår i två serier. Även: Omvårdnadsforskning vid Hälsouniversitetet i Linköping, 1101-475X; 13

Available from: 2007-04-10 Created: 2007-04-10 Last updated: 2018-03-23Bibliographically approved
List of papers
1. Life situation of patients with an implantable cardioverter defibrillator: a descriptive longitudinal study
Open this publication in new window or tab >>Life situation of patients with an implantable cardioverter defibrillator: a descriptive longitudinal study
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2001 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 10, no 4, p. 563-572Article in journal (Refereed) Published
Abstract [en]

The aim of this study was to describe changes in the life situation of patients with an implantable cardioverter defibrillator over a period of 1 year. A sample of 56 consecutive patients took part in the study.

Life situation was measured through uncertainty in illness, satisfaction, and fear of the life situation. Descriptive statistics were used to present results, and analytical statistics were used to map out changes over time.

Overall uncertainty showed a decrease over time. A statistically significant difference was found within the domain uncertainty related to information (P < 0.001).

Satisfaction increased within the domains health-functioning, socio-economic, psychological–spiritual, and family.

The ability to act within the domain health-functioning showed a statistical significance (P < 0.05).

The domain life changes within fear in the life situation decreased and showed a statistical significance (P < 0.05).

The overall life situation showed increased satisfaction as well as lower uncertainty and fear in the life situation.

The research indicates that patients need more information about changes in the life situation after the implantable cardioverter defibrillator-implantation. The study encourages more humanistic, holistic research about patients’ life situations as well as more education in teaching skills for health care personnel.

Place, publisher, year, edition, pages
John Wiley & Sons, Inc., 2001
Keywords
Implantable cardioverter defibrillator, Patient experiences, Uncertainty, Information, Satisfaction
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:hh:diva-1561 (URN)10.1046/j.1365-2702.2001.00494.x (DOI)000169890600020 ()11822504 (PubMedID)2-s2.0-0035411097 (Scopus ID)2082/1942 (Local ID)2082/1942 (Archive number)2082/1942 (OAI)
Available from: 2008-06-24 Created: 2008-06-24 Last updated: 2018-03-23Bibliographically approved
2. Quality of life related to shocks in ICD-recipients: a 5-year follow-up
Open this publication in new window or tab >>Quality of life related to shocks in ICD-recipients: a 5-year follow-up
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2006 (English)In: 6th Annual Spring Meeting of the Working Group on Cardiovascular Nursing of the European Society of Cardiology and the Spring Meeting of the Norwegian National Society of Cardiovascular Nurses Bergen, Norway 5–6 May 2006, London: Sage Publications, 2006, p. S20-S20Conference paper, Published paper (Refereed)
Abstract [en]

Purpose: The purpose of this study was to describe QoL in relation to shocks and uncertainty in ICD-recipients and to identify predictors of QoL over a 5-year period. Methods: The design was prospective and longitudinal. Thirty-five patients who had lived with the ICD for at least five years had taken part in the study. All recipients had received their ICD as a form of secondary prevention. The questionnaires Mishel Uncertainty in Illness Scale – community version (MUIS-C), Quality of Life Index – cardiac version (QLI-CV) were completed on three occasions: before implantation, at year 1 and at year 5 after implantation. Self-reported number of shocks between the implantation and year 1 and between year 1 and year 5 were described. Data were analyzed by descriptive as well as analytical statistics. Results: In general, QoL was lower at year 1 than before implantation (p = 0.033). A decrease in the socio-economic domain was observed at year 1 (p = 0.006) but improved again at year 5 (p = 0.027) although it remained below the value before implantation. ICD recipient’s satisfaction with the family domain decreased from the time before ICD implantation (p = < 0.001) and from year 1 (p = 0.039) to year 5 after implantation. A decrease in overall uncertainty was observed at year 5 in relation to year 1 (p = 0.009). The longer the ICD recipient had lived with the device, the greater the risk of receiving a shock. However, ICD recipients who received shocks reported being less troubled by them over time. Uncertainty was identified as a predictor of low QoL. Conclusion: The recipients reported a higher level of QoL at year 5 than at year 1. QoL was reasonably good 5 years after implantation and the ICD recipient felt more secure and perceived their ICD as a lifesaver.

Place, publisher, year, edition, pages
London: Sage Publications, 2006
Series
European Journal of Cardiovascular Nursing, ISSN 1474-5151 ; Volume 5, Supplement 1
National Category
Nursing
Identifiers
urn:nbn:se:hh:diva-6128 (URN)10.1016/j.ejcnurse.2006.03.001 (DOI)
Conference
6th Annual Spring Meeting of the Working Group on Cardiovascular Nursing of the European Society of Cardiology and the Spring Meeting of the Norwegian National Society of Cardiovascular Nurses, Bergen, Norway, 5-6 May 2006
Available from: 2010-10-14 Created: 2010-10-14 Last updated: 2018-03-23Bibliographically approved

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