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Living with a person with young onset dementia–spousal experience
Halmstad University, School of Health and Welfare.
Halmstad University, School of Health and Welfare.ORCID iD: 0000-0002-2189-7617
Halmstad University, School of Health and Welfare. Kristianstad University, Kristianstad, Sweden.ORCID iD: 0000-0002-6624-9963
2024 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 19, no 1, p. 1-13Article in journal (Refereed) Published
Abstract [en]

Purpose: Being of working age while at the same time needing to help a partner with young onset dementia has specific consequences for spouses. Research to date has been sparse concerning this particular group of spouses. The aim of the study was to explore spouses’ everyday experiences when living with a person with young onset dementia. Method: The study had a descriptive qualitative design with semi-structured interviews with nine spouses. The interviews were analysed using content analysis. Result: The interviewed spouses experienced emotions that varied from feelings of loneliness, frustration, and worry to peace of mind. They said that they used coping strategies, which included adopting a positive mindset, adapting to inabilities, adopting an avoidant approach, and finding ways to recharge. Spouses also felt that they could use more support, both formal and informal. Conclusion: The spouse of a person with young onset dementia has a range of emotional experiences and has resourceful ways of handling everyday life. Various types of support are offered to spouses, however, they seemed to desire more from health care services. © 2024 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.

Place, publisher, year, edition, pages
Oxfordshire: Taylor & Francis, 2024. Vol. 19, no 1, p. 1-13
Keywords [en]
emotional impact, everyday life, experience, spouse, Young onset dementia
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:hh:diva-53057DOI: 10.1080/17482631.2024.2330233ISI: 001186102600001PubMedID: 38493492Scopus ID: 2-s2.0-85188045363OAI: oai:DiVA.org:hh-53057DiVA, id: diva2:1849817
Available from: 2024-04-09 Created: 2024-04-09 Last updated: 2024-04-09Bibliographically approved

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Håkansson, TaniaSvensson, HildaKarlsson, Staffan

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CiteExportLink to record
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Citation style
  • apa
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  • de-DE
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