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Perpetuating ability to live life as usual: a grounded theory study of persons living with age-related macular degeneration
Halmstad University, School of Health and Welfare.ORCID iD: 0000-0002-2333-4316
Halmstad University, School of Health and Welfare.ORCID iD: 0000-0002-8345-8994
Halmstad University, School of Health and Welfare.ORCID iD: 0000-0001-8354-3382
2024 (English)In: BMC Geriatrics, E-ISSN 1471-2318, Vol. 24, article id 82Article in journal (Refereed) Published
Abstract [en]

Background: Age-Related Macular Degeneration (AMD) is an eye disease associated with age that causes progressive and irreversible loss of central vision, while the peripheral visual ability remains. The present study explored what it means to live with AMD through the eyes of those living with the condition. Methods: This is an explorative interview study. People who were ≥ 65 years old, living in their own homes, and diagnosed with advanced dry AMD in one or both eyes, causing a visual acuity of no more than 0.3 or worse in the best eye, were invited to participate in the study. The method chosen was the constructivist grounded theory, where reality is seen as fundamentally social and processual and a way of accessing the participants' experiences, thoughts, and feelings. Results: In total, 12 interviews were conducted. Living with dry AMD confronted different problems and challenges. The substantive theory, Perpetuating ability to live life as usual, is characterised by a desire to continue life as usual, which requires an acceptance of the disease's progress, self-acceptance of the new me, and an acceptance that you must live the new life a little more carefully. Moreover, the participants used three strategies to resolve the main concern: 1) Navigating the new normal, 2) Trusting own ability, and 3) Interdepending. Conclusion: Maintaining an everyday life is the primary concern among people with AMD. In supporting self-care, gaining information about the subjective experience to support their everyday living is of the utmost importance. This grounded theory captures valuable knowledge of how the older adults resolved their main concern “you got to keep on” despite their affected vision by “facing the fact” live life as usual since life continues. Our study also gives rise both to implications for research and practice in order to strengthen older people with AMD facing their future challenges. Trial registration: The Swedish Ethical Review Authority (EPN 2021/02877). © 2024, The Author(s).

Place, publisher, year, edition, pages
London: BioMed Central (BMC), 2024. Vol. 24, article id 82
Keywords [en]
Age-related macular degeneration, grounded theory, older adults, visual impairment
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:hh:diva-52558DOI: 10.1186/s12877-024-04689-9ISI: 001148270900001PubMedID: 38254006Scopus ID: 2-s2.0-85182866911OAI: oai:DiVA.org:hh-52558DiVA, id: diva2:1834786
Projects
Can you see the future? / Kan du se framtiden?
Funder
Halmstad University, F 2020/111Interreg Öresund-Kattegat-Skagerrak, NYPS - 20293225
Note

Open access funding provided by Halmstad University. 

Available from: 2024-02-05 Created: 2024-02-05 Last updated: 2024-07-04Bibliographically approved

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Källstrand Eriksson, JeanetteLindgren, Eva-CarinCarlsson, Ing-Marie

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