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Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients’ perspectives
University of the West of England, Bristol, UK; Cardiff University, Cardiff, UK.ORCID iD: 0000-0002-7253-0751
University of the West of England, Bristol, UK; University of Bristol, Bristol, UK.ORCID iD: 0000-0001-7355-124X
Halmstad University, School of Health and Welfare. Spenshult Research and Development Centre, Halmstad, Sweden. (Healthcare improvement group)ORCID iD: 0000-0002-4341-660X
Diakonhjemmet Hospital, Oslo, Norway; VID Specialized University, Oslo, Norway.ORCID iD: 0000-0001-6882-221X
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2022 (English)In: RMD Open, E-ISSN 2056-5933, Vol. 8, no 1, article id e002256Article in journal (Refereed) Published
Abstract [en]

Objectives: To explore patients’ agreement andreasons for agreement or disagreement with the EULAR recommendations for patient education (PE) for people with inflammatory arthritis (IA). Methods: This mixed-method survey collected data using snowball sampling. The survey had been translated into 20 languages by local healthcare professionals, researchers and patient research partners. It explored the degree towhich patients with IA agreed with each recommendationfor PE (0=do not agree at all and 10=agree completely)and their rationale for their agreement level in free text questions. Descriptive statistics summarised participants’ demographics and agreement levels. Qualitative contentanalysis was used to analyse the free text data. Sixteen subcategories were developed, describing the reasons foragreement or disagreement with the recommendations,which constituted the categories. Results: The sample comprised 2779 participants(79% female), with a mean (SD) age 55.1 (13.1) yearsand disease duration 17.1 (13.3) years. Participants strongly agreed with most recommendations (median10 (IQR: 9–10) for most recommendations). Reasonsfor agreement with the recommendations included thebenefit of using PE to facilitate collaborative care andshared decision making, the value of flexible and tailored PE, and the value of gaining support from other patients.Reasons for disagreement included lack of resources for PE, not wanting informa tion to be tailored by healthcare professionals and a reluctance to use telephone-basedPE. Conclusion: The EULAR recommendations for PE havebeen disseminated among patients with IA. Overall, agreement levels were very high, suggesting that they reflect patients’ preferences for engaging in collaborative clinical care and using PE to facilitate and supplement their own understanding of IA. Reasons for not completely agreeing with the recommendations can inform implementation strategies and education of healthcare professionals. © Author(s) (or their employer(s)) 2022.

Place, publisher, year, edition, pages
London: BMJ Publishing Group Ltd, 2022. Vol. 8, no 1, article id e002256
Keywords [en]
Eular-recommendation, Patients, Patient education, Mixed methods, Rheumatology
National Category
Nursing
Research subject
Health Innovation, IDC
Identifiers
URN: urn:nbn:se:hh:diva-48731DOI: 10.1136/rmdopen-2022-002256ISI: 000787333500001PubMedID: 35459751Scopus ID: 2-s2.0-85128802040OAI: oai:DiVA.org:hh-48731DiVA, id: diva2:1715676
Note

This work was funded by European Alliance of Associations for Rheumatology (EULAR, Grant ref: HPR040).

Available from: 2022-12-02 Created: 2022-12-02 Last updated: 2023-02-23Bibliographically approved

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Larsson, Ingrid

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Jones, BethanBennett, SarahLarsson, IngridZangi, HeidiBoström, CarinaVan der Elst, KristienFayet, FrançoiseFusama, MieHerrero Manso, María del CarmenHoeper, Juliana RachelKukkurainen, Marja LeenaKwok, Suet KeiFrãzao-Mateus, ElsaMinnock, PatriciaNava, TizianaPavic Nikolic, MilenaPrimdahl, JetteRawat, RoopaSierakowska, MatyldaVoshaar, Mariekevan Tubergen, AstridNdosi, Mwidimi
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