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”Vi måste säga att det är fara för hennes liv för hon kommer ju aldrig få någon vård”: En kvalitativ studie om anhörigas upplevelser av delaktighet i vården för närstående personer med diagnosen schizofreni eller schizoaffektivt syndrom
Halmstad University, School of Health and Welfare.
Halmstad University, School of Health and Welfare.
2021 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
"We must say that her life is in danger because she will never receive any care" : A qualitative study of relatives' experiences of participation in care for close relatives with a diagnosis of schizophrenia or schizoaffective syndrome (English)
Abstract [sv]

Syftet med denna C-uppsats var att belysa hur anhöriga upplever sin roll i kontakten med psykiatrin till en närstående med diagnosen schizofreni eller schizoaffektivt syndrom. Det undersöks vilka erfarenheter anhöriga har angående att delta i processen kring vårdinsatser för en närstående. Vi hoppas att studien kan bidra till ytterligare sociologisk kunskap inom ämnesområdet för att lyfta anhörigas situation och känsla av utanförskap i relation till vården. Uppsatsen bygger på en kvalitativ intervjustudie där åtta personer har intervjuats över telefon och över Zoom. Genom fem artiklar och en historisk tillbakablick över hur psykiatrin i Sverige har utvecklats så får läsaren en djupare förståelse för hur anhörigas roll relaterat till psykiatrin har utvecklats och ser ut idag. Resultatet redovisas genom att presentera tre teman: Anhörigas kontakt med vårdpersonal, Nutid och Framtid samt Förbättringar gällande anhörigas delaktighet. Vid varje tema sammanfattas intervjusvaren där skillnader och likheter framställs och jämförs med varandra. Det teoretiska ramverket grundar sig på Melvin Seemans alienationsteori samt Birgitta Andersheds teori om delaktighet och används i analysen för att besvara frågeställningarna. Resultatet av den sociologiska analysen visar att anhörigas delaktighet i den närståendes vård förebygger anhörigas upplevelser av maktlöshet, meningslöshet och social isolering i sin vardag och i sin relation till vården. Delaktigheten bidrar även till att anhöriga mår bättre psykiskt och att närstående kan få vård i ett tidigare skede.

Abstract [en]

The purpose of this bachelor’s thesis was to shed light on how relatives experience their role in contact with psychiatry to a relative with a diagnosis of schizophrenia or schizoaffective syndrome. It also examines what experiences relatives have regarding being included in the process around care interventions. We hope that with this study we can contribute to further sociological knowledge in this subject area to raise the situation of relatives. The thesis is based on a qualitative interview study where eight people were interviewed over the phone and over Zoom. Through a number of articles and a historical review of how psychiatric healthcare in Sweden has developed, the reader gets a deeper understanding of how the role of relatives related to psychiatry has developed and how it looks today. The result is presented by three themes: Relatives' contact with care staff, Present and Future and Improvements regarding relatives' participation. For each theme, the interview results are summarized where differences and similarities are presented and compared with each other. The theoretical framework is based on Melvin Seeman's theory of alienation and Birgitta Andershed’s theory on participation and is used in the analysis to answer the questions. The results of the sociological analysis show that the relatives’ participation in the care of the close relative prevents the relatives' experiences of powerlessness, meaninglessness and social isolation in their everyday life and in their relationship to the care. Participation also contributes to relatives feeling better mentally and that relatives can receive care at an earlier stage.

Place, publisher, year, edition, pages
2021. , p. 54
Keywords [en]
Relative, psychiatric health care contact, schizophrenia, schizoaffective disorder, participation, exclusion, alienation
Keywords [sv]
Anhörig, psykiatrisk vårdkontakt, schizofreni, schizoaffektivt syndrom, delaktighet, utanförskap, alienation
National Category
Social Sciences Sociology Psychiatry Medical and Health Sciences Law and Society Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:hh:diva-45537OAI: oai:DiVA.org:hh-45537DiVA, id: diva2:1590994
Subject / course
Sociology
Educational program
Social Change and Social Sustainability, 180 credits
Supervisors
Examiners
Available from: 2021-09-20 Created: 2021-09-04 Last updated: 2021-09-20Bibliographically approved

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Citation style
  • apa
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