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Children and young people’s experiences of participation in pediatric rehabilitation: a qualitative study
The Child and Youth Rehabilitation Service, Region Skåne, Kristianstad & Hässleholm, Sweden.ORCID iD: 0000-0003-2466-9107
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).ORCID iD: 0000-0003-4438-6673
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).ORCID iD: 0000-0002-3576-2393
Psychiatric Clinic, Region Halland, Halmstad, Sweden.
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2019 (English)In: 31st EACD Conference, 2019Conference paper, Poster (with or without abstract) (Refereed)
Abstract [en]

Introduction: Creating a healthcare system of justice requires a child-centered care where children and young people, regardless of disability, are allowed to participate in their own rehabilitation. The aim of this study was to explore children and young people’s experiences of participation in pediatric rehabilitation.

Patients and methods: The study had a descriptive design with a qualitative content analysis approach. Interviews were conducted with 20 children (6-17 years old, 9 girls and 11 boys) and 8 young people (18-30 years old, 6 women and 2 men) with intellectual disabilities, physical disabilities or autism spectrum disorders.

Results: Three categories emerged that reflected children and young people’s experiences of participation in pediatric rehabilitation: to be included; to be empowered; and to feel supported. To be included meant that children and young people are respected, listened to and involved in shared decision-making. To be empowered comprised autonomy, responsibility and understanding as essential aspects for participation. To feel supported meant that children and young people described their parents as facilitators for enabling participation by supporting communication and being a bridge between child and professionals.

Conclusion: To increase participation, children need support in communication with the healthcare professionals in a way that they feel respected, empowered and able to be included in decisions concerning their own pediatric rehabilitation. This result constitutes an important step in the development of a forthcoming digital communication and decision tool, with the main objective to increase participation, for children with disabilities.

Place, publisher, year, edition, pages
2019.
Keywords [en]
child, participation
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-39492OAI: oai:DiVA.org:hh-39492DiVA, id: diva2:1318286
Conference
31st EACD Conference, Paris, France, May 23-25, 2019
Note

Abstract No. P8035

Available from: 2019-05-27 Created: 2019-05-27 Last updated: 2019-08-15

Open Access in DiVA

No full text in DiVA

Other links

https://onlinelibrary.wiley.com/toc/14698749/2019/61/S2

Authority records BETA

Svedberg, PetraNygren, Jens M.Larsson, Ingrid

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Vinblad, ElinSvedberg, PetraNygren, Jens M.Larsson, Ingrid
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CiteExportLink to record
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Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
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Language
  • de-DE
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  • Other locale
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Output format
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  • asciidoc
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