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Parents’ expectations of a digital decision support tool for children with disabilities in pediatric rehabilitation – a qualitative study
The Child and Youth Rehabilitation Service, Region Skåne, Kristianstad och Hässleholm, Sweden.ORCID iD: 0000-0003-2466-9107
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).ORCID iD: 0000-0002-3576-2393
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).
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2019 (English)In: 31st EACD Conference, 2019Conference paper, Poster (with or without abstract) (Refereed)
Abstract [en]

Introduction: Children with disabilities usually have an extensive need for support from their parents in communication with healthcare professionals in pediatric rehabilitation. The aim of this study was to explore parents’ expectations of a digital communication and decision making tool for children with disabilities in pediatric rehabilitation.

Patients and methods: The study had a descriptive design with a qualitative content analysis approach. Interviews were conducted with 17 parents (aged 31-62 years, 13 mothers and 4 fathers) to children with intellectual disabilities, physical disabilities or autism spectrum disorders. Results: Three categories emerged reflecting parents’ expectation of how to increase participation in rehabilitation by using a digital communication and decision tool: 1) the children will become more confident with a higher self-esteem if they easily can express themselves and their inner thoughts 2) the children will respond more honestly without considering what their parents or healthcare professionals expect to hear 3) the children will become more independent if they have a possibility to be involved and understand decisions in their own rehabilitation.

Conclusion: The parents highlighted the importance of self-esteem as prerequisites to increase participation in rehabilitation for their children with disabilities, which they believed could be achieved by using a digital tool. A digital communication and decision making tool would strengthen the children’s voices in their own rehabilitation. This result constitutes therefore a basis in the development of a forthcoming digital communication and decision making tool, with the main objective to increase participation, for children with disabilities.

Place, publisher, year, edition, pages
2019.
Keywords [en]
Children, digital desicion support tool, parents, participation
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-39491OAI: oai:DiVA.org:hh-39491DiVA, id: diva2:1318282
Conference
31st EACD Conference, Paris, France, May 23-25, 2019
Available from: 2019-05-27 Created: 2019-05-27 Last updated: 2019-11-12Bibliographically approved

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Other links

http://edu.eacd.org/sites/default/files/Meeting_Archive/Paris-19/ParisPosters/P8035.pdf

Authority records BETA

Nygren, Jens M.Karsson, CarolineTeleman, BrittaSvedberg, PetraLarsson, Ingrid

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Vinblad, ElinNygren, Jens M.Karsson, CarolineTeleman, BrittaSvedberg, PetraLarsson, Ingrid
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CiteExportLink to record
Permanent link

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Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf