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Att drunkna utan vatten: en litteraturstudie om att leva med cystisk fibros
Halmstad University, School of Health and Welfare.
Halmstad University, School of Health and Welfare.
2019 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
To drown without water: a literatur study about living with cystic fibrosis (English)
Abstract [sv]

Bakgrund: Cystisk fibros (CF) är inte längre en barnsjukdom eftersom 95% lever upp i vuxen ålder. Sjukdomen har stor påverkan på kroppens organ där lungorna och mag-och tarmkanalen är främst utsatta. Behandlingen är krävande och består till stor del av egenvård. Syfte: Syftet var att belysa personers erfarenheter av att leva med CF. Metod: Studien är utformad som allmän litteraturstudie med induktiv ansats. Sökningar genomfördes i tre databaser och genererade i elva artiklar. Resultat: Fyra kategorier skapades: Oro över att vara annorlunda, Symtomens påverkan på livet, Hopp och lidande samt Vårderfarenheter. Konklusion: Personer med CF upplever en bristande normalitet, önskan om ett normalt liv och en relation med döden. Att vara delaktig i vården är en förutsättning för personer med CF och bidrar till självständighet. Fortsatt forskning inom sjukdomen behövs för att lindra lidandet hos personer med CF. 

Abstract [en]

Background: Cystic fibrosis (CF) is no longer a pediatric disease since 95% live up to adulthood. The disease has a great impact on the organs especially the lungs and the gastrointestinal tract. The treatment is very demanding and consists mainly of selfcare. Aim: The aim of this study was to illustrate persons´ experience of living with CF. Method: The study was constructed as a general literature study with an inductive approach. The searches were conducted in three different databases and resulted in eleven articles. Result: These eleven articles resulted in four categories: The worry of being different, The symptoms effect on life, Hope and suffering and Health care experience. Conclusion: People with CF experience a lack of normality, a wish for a normal life and they have a relationship with death. Being involved in the care is a prerequisite for people with CF and it contributes to independence. Continued research within the disease is necessary to relieve the suffering of people with CF.

Place, publisher, year, edition, pages
2019. , p. 17
Keywords [en]
Cystic fibrosis, experience, self-care, suffering
Keywords [sv]
Cystisk fibros, egenvård, erfarenhet, lidande
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-39375OAI: oai:DiVA.org:hh-39375DiVA, id: diva2:1316326
Subject / course
Nursing
Educational program
Nursing Programme, 180 credits
Supervisors
Examiners
Available from: 2019-05-17 Created: 2019-05-17 Last updated: 2019-05-17Bibliographically approved

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CiteExportLink to record
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Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
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  • sv-SE
  • Other locale
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Output format
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