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Man hittar ju sina vägar för man är så illa tvungen: 6 mödrar om att hjälpa sina barn med ASD med deras personliga hygien
Halmstad University, School of Health and Welfare.
2018 (Swedish)Independent thesis Advanced level (degree of Master (One Year)), 20 credits / 30 HE creditsStudent thesis
Abstract [sv]

Trots att studier visar att personer med autismspektrumdiagnos (ASD) ofta behöver hjälp med att sköta sin personliga hygien, samt att mödrar till barn med ASD ofta behöver assistera dem i deras aktiviteter i dagliga livet (ADL) saknas det forskning om vad detta stöd faktiskt består av. Syftet med den aktuella studien är att öka kunskapen om mödrars erfarenheter av att hjälpa ungdomar med ASD med deras personliga hygien samt med påklädning. 3 flickmödrar och 3 pojkmödrar intervjuades om hur de hjälpte sina barn med Dusch/Tvätt, Hårvård, Naglar, Påklädning, Tandborstning, Toalettbesök, Torka sig efter toalettbesök samt Torka sig med handduk. Flickmödrar fick också frågor om Menstruation. Analysen baserades på Anthony Giddens' teorier om Modernitet och Självidentitet. Intervjuerna skrevs om till 6 narrativ, vilka analyserades tillsammans med relevanta delar från intervjuerna. Resultatet presenteras som 3 huvudteman. Resultatet visar bland annat att ungdomarna hade ett omfattande hjälpbehov och att mödrarna hjälpte sina barn både fysiskt och verbalt. Mödrarnas förståelse för och lojalitet gentemot barnen och deras svårigheter var förhållandevis hög medan deras tillit till sakkunniga var relativt låg.

Abstract [en]

Although studies indicate that people with Autism Spectrum Disorder (ASD) often need help with their personal hygiene, in addition to the fact that mothers of children with ASD often need to assist them in their activities of daily living (ADL), little research has been made as to what this support actually consists of. The purpose of the present study is to investigate how mothers of children aged 10-15 with ASD help their children to manage their personal hygiene, and what effect this has on their mothers. 3 mothers of girls and 3 mothers of boys were interviewed about how they supported their children in the following activities: Dressing, Hair care, Nail cutting, Toilet use, Tooth brushing, Toweling, Washing and Wiping. Mothers of girls were also asked about Menstruation. The analyses were based on Anthony Giddens' theories on Modernity and Self Identity. Afterwards, the interviews were converted into six narratives. These narratives along with pertinent elements from the interviews were analyzed and the result presented as 3 main themes. Results show among other things that the mothers supported their children both physically and verbally. The mothers' appreciation and loyality with their children were proportionately high, whereas their confidence in experts was rather low.

Place, publisher, year, edition, pages
2018. , p. 63
Keywords [en]
ADL, ASD, Caregiving, Children, Mothes, Personal Hygiiene
Keywords [sv]
ADL, ASD, Barn, Mödrar, Omvårdnad, Personlig hygien
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hh:diva-38261OAI: oai:DiVA.org:hh-38261DiVA, id: diva2:1260880
Educational program
Master's Programme of Disability Studies, 60 credits
Supervisors
Examiners
Available from: 2018-11-06 Created: 2018-11-05 Last updated: 2018-11-06Bibliographically approved

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CiteExportLink to record
Permanent link

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Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf