hh.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Predicting caregiver burden in informal caregivers caring for persons with dementia living at home – A follow-up cohort study
Lund University, Lund, Sweden.ORCID iD: 0000-0002-2523-8440
University of Turku, Turku, Finland & University Hospital of Turku, Turku, Finland.
Maastricht University, Maastricht, The Netherlands.
Witten/Herdecke University, Witten, Germany & Martin Luther University Halle-Wittenberg, Halle, Germany.
Show others and affiliations
2018 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684Article in journal (Refereed) Epub ahead of print
Abstract [en]

Longitudinal studies of caregiver burden when caring for persons with dementia living at home are sparse. The aim of the study was to identify factors associated with caregiver burden and predicting increased burden related to caregivers, persons with dementia and formal care. Data were collected through interviews with 1223 caregivers in eight European countries. Bivariate and multivariate regression analyses were performed. Factors associated with caregiver burden included extensive informal care provision, decreased well-being and reduced quality of life for the caregiver and reduced cognition, decreased quality of life, severe neuropsychiatric symptoms and depression in the person with dementia and caregivers’ negative experience of quality of care. Factors predicting an increased burden were diminished caregiver well-being, severe neuropsychiatric symptoms of the person with dementia and caregivers’ negative perception of quality of care. The knowledge gained in this study may be useful in developing more adequate service systems and interventions to improve dementia care. © 2018, The Author(s) 2018.

Place, publisher, year, edition, pages
London: Sage Publications, 2018.
Keywords [en]
caregiver burden, care provision, dementia, home care, quality of care
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-36715DOI: 10.1177/1471301218782502PubMedID: 29929383Scopus ID: 2-s2.0-85048872839OAI: oai:DiVA.org:hh-36715DiVA, id: diva2:1203385
Projects
RightTimePlaceCare
Funder
EU, FP7, Seventh Framework Programme, 242153Available from: 2018-05-03 Created: 2018-05-03 Last updated: 2018-07-04

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textPubMedScopus

Authority records BETA

Karlsson, Staffan

Search in DiVA

By author/editor
Lethin, ConnieZabalegui, AdelaidaKarlsson, StaffanNilsson, Christer
By organisation
Centre of Research on Welfare, Health and Sport (CVHI)
In the same journal
Dementia
Nursing

Search outside of DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 42 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf