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Psychological well-being over time among informal caregivers caring for persons with dementia living at home
Lund University, Faculty of Medicine, Lund, Sweden.
University of Witten/Herdecke, Witten, Germany.
Department of Health Services Research, Maastricht University, Maastricht, Netherlands.
Alzheimers disease Research and Clinical Centre in Toulouse, Toulouse, France.
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2017 (English)In: IAGG 2017 Abstract Book, Washington, DC: The Gerontological Society of America , 2017, Vol. 1, p. 1381-1381Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

This study investigated informal caregivers’ psychologi- cal well-being and predicted increase in psychological well- being, when caring for persons with dementia (PwDs) living at home, related to caregiver, PwD and formal care (FC) factors. This was a cohort study, at baseline and follow-up in eight European countries. Caregivers included (n=1,223) were caring for PwDs aged ≥ 65 years living at home, in risk of being institutionalized. Data was collected using standard- ized instruments. Logistic regression analysis of factors asso- ciated with caregiver psychological well-being at baseline and 3 months later was performed. Factors associated with presence of caregiver psychological well-being at baseline were positive experience of caregiving, low caregiver burden, high quality of life (QoL) for caregivers, male gender of PwD, high QoL of PwD and few neuropsychiatric symptoms for the PwD. At follow-up, caregivers with increased psychologi- cal well-being experienced quality of care (QoC) higher and were more often using dementia speci c service. Predicting factors for caregivers’ increased psychological well-being were less caregiver burden, positive experience of caregiv- ing, less supervision of the PwD and higher caregiver QoL, if PwD were male, had higher QoL and less neuropsychiat- ric symptoms. Higher QoC predicted increased caregivers’ psychological well-being. It can be concluded that informal caregiving for PwDs living at home is a complex task. Our study showed that caregivers’ psychological well-being was associated with, among other things, less caregiver burden and higher QoL. Professionals should be aware of PwD neu- ropsychiatric symptoms that might affect caregivers’ psycho- logical well-being, and provide proper care and treatment for caregivers and PwDs.

Place, publisher, year, edition, pages
Washington, DC: The Gerontological Society of America , 2017. Vol. 1, p. 1381-1381
Series
Innovation in aging, E-ISSN 2399-5300 ; Suppl. 1
Keywords [en]
Dementia, caregivers, health professionals, home care services, adaptation, psychological
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-36006OAI: oai:DiVA.org:hh-36006DiVA, id: diva2:1169664
Conference
21st IAGG World Congress of Gerontology and Geriatrics, in San Francisco, USA, July 23-27, 2017
Available from: 2017-12-29 Created: 2017-12-29 Last updated: 2018-01-10Bibliographically approved

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Karlsson, Staffan

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CiteExportLink to record
Permanent link

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Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf