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Dementia care in eight European countries from the perspective of recipients and their caregivers
Health Sciences, Lund University, Lund, Sweden.ORCID iD: 0000-0002-6624-9963
Department of Health Services Research, Maastricht University, Maastricht, Netherlands.
Evidence-based Practice Research Centre, Edge Hill University, Lancashire & Personal Social Services Research Unit, University of Manchester, Manchester, United Kingdom.
Department of Internal Medicine , University of Tartu, Tartu, Estonia.
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2015 (English)In: Abstract Booklet: Care, Cure and the Dementia Experience - A Global Challenge, 2015, p. 318-318Conference paper, Poster (with or without abstract) (Refereed)
Abstract [en]

Objectives: To investigate persons with dementia and their informal caregivers’ views of inter-sectoral information, communication and collaboration throughout the trajectory of dementia care, in eight European countries

Methods: 137 persons with dementia and their informal caregivers participated in focus group interviews. Content analysis generated a tentative model of information, communication and collaboration for people with dementia and their caregivers.

Results: The core nding was that information, communication and collaboration were to be focused on the persons with dementia and the informal caregivers. Entering into the trajectory of the disease and its consequences was addressed as an important point of departure. The relation to professional care required establishing a trusting relationship, tailor-made intervention and a single person or organisation to contact. Professional knowledge and commitment, variation in service, and care adapted to needs were important.

Conclusion: As focus of care is on the person with dementia and their informal caregivers, a dyadic approach seems most suitable for dementia care. A trusting relationship and a speci c person or organisation to contact seem to be indicators of best practice, as does adaptation to the needs of the person with dementia and their informal caregiver. 

Place, publisher, year, edition, pages
2015. p. 318-318
Keyword [en]
dementia, focus groups, older people, informal caregiver, nursing, best practice
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-36002OAI: oai:DiVA.org:hh-36002DiVA: diva2:1169651
Conference
30th International Conference of Alzheimer’s Disease International, Perth, Australia, 15 -18 April, 2015
Available from: 2017-12-28 Created: 2017-12-28 Last updated: 2018-01-10Bibliographically approved

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Karlsson, Staffan

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CiteExportLink to record
Permanent link

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Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf