hh.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Formal support for informal caregivers to persons with dementia through the trajectory of the disease in eight European countries
Department of Nursing, Department of Nursing and The Swedish Institute for Health Science, Lund, Sweden.
Nursing Science, University of Turku, Turku, Finland.
Nursing Science, University of Manchester, Manchester, United Kingdom.
Alzheimer ́s Disease Research and Clinical Centre , University Hospital, Toulouse, France.
Show others and affiliations
2015 (English)In: Abstract Booklet: Care, Cure and the Dementia Experience - A Global Challenge, 2015, p. 237-237Conference paper, Poster (with or without abstract) (Refereed)
Abstract [en]

Objectives: In European countries knowledge about availability and utilisation of support for informal caregivers caring for older person with dementia (PwD) is lacking. To be able to evaluate and develop the dementia support system forinformal caregivers to a PwD, a survey of European support systems and professional providers could serve as a knowledge base and enable European countries to learn from each other.The aim was to explore support for informal caregivers to PwD in terms of availability and utilisation, and to explore professional care providers and their educational levels involved in the support for informal caregivers to PwD through the trajectory of disease across eight European countries.

Methods: A mapping system aiming to explore care and service for PwD and informal caregivers in eight European countries was used (Hallberg et al., 2013) to gather information about availability, utilisation and providers of support to informal caregivers caring for PwD.

Results: Counselling, caregiver support and education where the support activities that had high availability in the diagnose stage to the intermediate stage with a decrease in late to end of life stage. Utilization was low with a small increase in the intermediate stage. Day care and respite care at home had high availability in the diagnose stage to the intermediate stage with a decrease in the late to end of life stage, utilized by no one or few through all stages. Professionals specialised in dementia (Bachelor to Master degree) provided counselling, education while caregiver support for informal caregivers and day care, respite care and respite care at home as relief for informal caregivers was provided by professionals from upper secondary school to a master degree.

Conclusion: Availability and utilisation of support for informal caregivers appears to be related to each countries care and support systems. Countries with National guidelines for PwD and informal caregivers seemed to be more aware about the importance of professionals specialised in dementia in the support.

Place, publisher, year, edition, pages
2015. p. 237-237
Keywords [en]
Trajectory of dementia, European countries, Formal care, Informal caregivers, Persons with dementia
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-36001OAI: oai:DiVA.org:hh-36001DiVA, id: diva2:1169650
Conference
30th International Conference of Alzheimer’s Disease International, Perth, Australia, 15 -18 April, 2015
Available from: 2017-12-28 Created: 2017-12-28 Last updated: 2018-01-25Bibliographically approved

Open Access in DiVA

No full text in DiVA

Other links

Abstract Book

Authority records BETA

Karlsson, Staffan

Search in DiVA

By author/editor
Karlsson, Staffan
Nursing

Search outside of DiVA

GoogleGoogle Scholar

urn-nbn

Altmetric score

urn-nbn
Total: 19 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf