hh.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Informal caregivers view of collaboration, communication and information to a person with dementia in sweden
Lund University, Lund, Sweden.
Lund University, Lund, Sweden.ORCID iD: 0000-0002-6624-9963
2012 (English)In: 21st Nordic Congress of Gerontology : Dilemmas in Ageing Societies: Abstracts and Program, 2012, p. 191-191Conference paper, Poster (with or without abstract) (Refereed)
Abstract [en]

Background: People with dementia are often cared for by informal caregivers combined with formal care. Informal caregiver’s experiences of formal care through the trajectory of dementia are important for understanding how formal care is working and how the care can be developed.

Objectives: To explore informal caregiver’s view of collabora - tion, communication and information with formal care when providing care to a person with dementia in the trajectory from diagnosis to end of life in a Swedish context.

Method: Four focus groups interviews were provided with informal caregivers and persons with dementia. An interview guide was used, for discussing how communication with formal care works, the characteristics when it is working well and less well, how informal caregivers wish interaction with formal care should work and suggestions for improvement. The transcribed verbatim was analysed using latent content analysis.

Results: Preliminary results showed that the participants had different experience, good or bad, from both caring for a relative in the home and caring for a relative in a nursing home. The themes appearing after analyse were: for participants contextual situation “An unwanted lifestyle with changes in roles”, for participant’s description of collaboration with professionals “Getting resources or finding your own way.” and participant’s description of the information and communication was “Either safe or struggling”.

Conclusion: For informal caregivers to feel safe with care and service for the person with dementia the information is needed to be individualised and personalised through the entire trajectory.

Place, publisher, year, edition, pages
2012. p. 191-191
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-35991OAI: oai:DiVA.org:hh-35991DiVA, id: diva2:1169622
Conference
21st Nordic Congress in Gerontology (NKG 2012), June 10-13 2012, Copenhagen, Denmark
Note

Poster no. P2-73

1st prise for best poster

Available from: 2017-12-28 Created: 2017-12-28 Last updated: 2018-01-12Bibliographically approved

Open Access in DiVA

No full text in DiVA

Authority records BETA

Karlsson, Staffan

Search in DiVA

By author/editor
Karlsson, Staffan
Nursing

Search outside of DiVA

GoogleGoogle Scholar

urn-nbn

Altmetric score

urn-nbn
Total: 9 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf