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Self-advocacy in Sweden—an analysis of impact on daily life and identity of self-advocates with intellectual disability
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), The Wigforss Group.ORCID iD: 0000-0003-2636-7452
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), The Wigforss Group. La Trobe University, Melbourne, Australia.ORCID iD: 0000-0002-7519-6488
Malmö University, Malmö, Sweden.
2017 (English)In: Cogent Social Sciences, E-ISSN 2331-1886, Vol. 3, article id 1304513Article in journal (Refereed) Published
Abstract [en]

Self-determination and the ability to express opinions and preferences are fundamental to all people. Some people with intellectual disability no longer accept a subordinated role as disabled and new self-advocacy groups have evolved. The aim of this study was to analyse the meaning and importance of engagement in a self-advocacy group for self-advocates daily life and identity. An interpretative abductive approach was used to analyse data from interviews with 26 self-advocates from six self-advocacy groups in Sweden in relation to the theoretical concepts; recognition, social capital, culture capital and self-determination. The key finding is that the vast majority of the participants experienced a changed self-perception, as more skilled, social and confident people, depending on group affiliation, their personal engagement and positions within the group. The conclusion is that self-advocacy is important for daily life and identity of people with intellectual disability. The self-organized movements indicate an important change in society and the results are of importance not only for the target group but for shaping future support and treatment from society of people with intellectual disability. © 2017 The Author(s).

Place, publisher, year, edition, pages
Abingdon: Cogent OA , 2017. Vol. 3, article id 1304513
Keywords [en]
intellectual disability, self-advocacy, identity and belonging, attitude change, attitudes, empowerment approach, self-determination, self-esteem, Sweden
National Category
Social Work
Identifiers
URN: urn:nbn:se:hh:diva-35179DOI: 10.1080/23311886.2017.1304513ISI: 000397718900001Scopus ID: 2-s2.0-85051419078OAI: oai:DiVA.org:hh-35179DiVA, id: diva2:1148672
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2012-00576Available from: 2017-10-12 Created: 2017-10-12 Last updated: 2020-02-03Bibliographically approved

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Self advocacy in Sweden(1221 kB)478 downloads
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Mineur, TheréseTideman, Magnus

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