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Effects of Using Child Personas in the Development of a Digital Peer Support Service for Childhood Cancer Survivors
Halmstad University, School of Information Technology, Halmstad Embedded and Intelligent Systems Research (EIS), Man and Information technology laboratory (MI-lab).ORCID iD: 0000-0002-2791-6647
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI). (Hälsoinnovationer för barns psykiska hälsa)ORCID iD: 0000-0003-4438-6673
Halmstad University, School of Information Technology, Halmstad Embedded and Intelligent Systems Research (EIS), Man and Information technology laboratory (MI-lab).ORCID iD: 0000-0002-8596-2027
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI). (Hälsoinnovationer för barns psykiska hälsa)ORCID iD: 0000-0002-3576-2393
2017 (English)In: Journal of Medical Internet Research, ISSN 1438-8871, E-ISSN 1438-8871, Vol. 19, no 5, e161Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Peer support services have the potential to support children who survive cancer by handling the physical, mental, and social challenges associated with survival and return to everyday life. Involving the children themselves in the design process allows for adapting services to authentic user behaviors and goals. As there are several challenges that put critical requirements on a user-centered design process, we developed a design method based on personas adapted to the particular needs of children that promotes health and handles a sensitive design context.

OBJECTIVE: The purpose of this study was to evaluate the effects of using child personas in the development of a digital peer support service for childhood cancer survivors.

METHODS: The user group's needs and behaviors were characterized based on cohort data and literature, focus group interviews with childhood cancer survivors (n=15, 8-12 years), stakeholder interviews with health care professionals and parents (n=13), user interviews, and observations. Data were interpreted and explained together with childhood cancer survivors (n=5) in three explorative design workshops and a validation workshop with children (n=7).

RESULTS: We present findings and insights on how to codesign child personas in the context of developing digital peer support services with childhood cancer survivors. The work resulted in three primary personas that model the behaviors, attitudes, and goals of three user archetypes tailored for developing health-promoting services in this particular use context. Additionally, we also report on the effects of using these personas in the design of a digital peer support service called Give Me a Break.

CONCLUSIONS: By applying our progressive steps of data collection and analysis, we arrive at authentic child-personas that were successfully used to design and develop health-promoting services for children in vulnerable life stages. The child-personas serve as effective collaboration and communication aids for both internal and external purposes.

Place, publisher, year, edition, pages
Toronto: J M I R Publications, Inc. , 2017. Vol. 19, no 5, e161
Keyword [en]
cancer, childhood, participation, peer, service design, survivor, user experience
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:hh:diva-35033DOI: 10.2196/jmir.7175PubMedID: 28526663Scopus ID: 2-s2.0-85019932388OAI: oai:DiVA.org:hh-35033DiVA: diva2:1142651
Available from: 2017-09-19 Created: 2017-09-19 Last updated: 2017-09-20Bibliographically approved

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Wärnestål, PontusSvedberg, PetraLindberg, SusanneNygren, Jens M.
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Man and Information technology laboratory (MI-lab)Centre of Research on Welfare, Health and Sport (CVHI)
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CiteExportLink to record
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