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Quality of life in patients with established rheumatoid arthritis: A phenomenographic study
Lund University, Lund, Sweden; Spenshult Research and Development Center, Halmstad, Sweden; Rheumatology, Capio Movement, Halmstad, Sweden & FoU Spenshult, Halmstad, Sweden.
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI). Lund University, Lund, Sweden; Spenshult Research and Development Center, Halmstad, Sweden & The Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.ORCID iD: 0000-0002-6294-538X
Lund University, Lund, Sweden; Spenshult Research and Development Center, Halmstad, Sweden.
Halmstad University, School of Business, Engineering and Science, The Rydberg Laboratory for Applied Sciences (RLAS). Lund University, Lund, Sweden; Spenshult Research and Development Center, Halmstad, Sweden.ORCID iD: 0000-0002-8081-579X
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2017 (English)In: SAGE Open Medicine, E-ISSN 2050-3121, Vol. 5, 2050312117713647Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: Patients with rheumatoid arthritis perceive reduced quality of life in several domains, such as physical health, level of independence, environment and personal beliefs, compared with the healthy population. There is an increasing interest in quality of life in clinical and medical interventions. Few studies have explored patients' individual conceptions of quality of life, and interviews can thus complement quantitative studies. There is a need for a deeper understanding of the patients' experiences of quality of life, with regard to living with a long-term condition such as rheumatoid arthritis. The aim of this study was to explore the variation of ways in which patients with established rheumatoid arthritis understand the concept of quality of life.

METHODS: The study had a qualitative design with a phenomenographic approach, which was used to describe variations in how individuals experience their quality of life. The study is based on interviews with 22 patients with established rheumatoid arthritis enrolled in the BARFOT (better anti-rheumatic pharmacotherapy) study.

RESULTS: The concept of quality of life could be understood in three different ways: (1) independence in terms of physical functioning and personal finances, (2) empowerment in how to manage life and (3) participation as an experience of belonging in a social context.

CONCLUSION: The different conceptions of quality of life reflect the complexity in the concept, including physical, psychological and social aspects. This complexity is important to have in mind when health professionals support patients in enhancing their quality of life. © The Author(s) 2017

Place, publisher, year, edition, pages
Thousand Oaks, CA: Sage Publications, 2017. Vol. 5, 2050312117713647
Keyword [en]
Rheumatology/clinical immunology, qualitative study, quality of life, rheumatoid arthritis
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-34944DOI: 10.1177/2050312117713647PubMedID: 28611920OAI: oai:DiVA.org:hh-34944DiVA: diva2:1141066
Note

Funding: Swedish Rheumatism Association, the County Council of Halland Research fund, and the Norrbacka-Eugenia Foundation

Available from: 2017-09-13 Created: 2017-09-13 Last updated: 2017-09-14Bibliographically approved

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Bergman, StefanBremander, AnnLarsson, Ingrid
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