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Educational needs in patients with spondyloarthritis in Sweden - a mixed-methods study
Halmstad University, School of Business, Engineering and Science, The Rydberg Laboratory for Applied Sciences (RLAS). Spenshult Research and Development Center, Halmstad, Sweden.ORCID iD: 0000-0002-1445-5247
Halmstad University, School of Business, Engineering and Science, The Rydberg Laboratory for Applied Sciences (RLAS). Spenshult Research and Development Center, Halmstad, Sweden & Lund University, Lund, Sweden.ORCID iD: 0000-0002-8081-579X
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI). Spenshult Research and Development Center, Halmstad, Sweden; Lund University, Lund, Sweden & ahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.ORCID iD: 0000-0002-6294-538X
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI), Health and Nursing. Spenshult Research and Development Center, Halmstad, Sweden.ORCID iD: 0000-0002-4341-660X
2017 (English)In: BMC Musculoskeletal Disorders, ISSN 1471-2474, E-ISSN 1471-2474, Vol. 18, no 1, 335Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: There is a demand for a flexible and individually tailored patient education to meet patients' specific needs and priorities, but this area has seldom been studied in patients with spondyloarthritis (SpA), a family of inflammatory rheumatic diseases. The aim of the present study was to identify needs and priorities in patient education in patients with SpA. A second aim was to investigate patients' experiences and preferences of receiving patient education.

METHODS: Data collection included a questionnaire survey with the Educational Needs Assessment Tool (ENAT) and interviews, using a mixed-methods design. Patients were identified through a specialist clinic register. Descriptive data are presented as mean with standard deviation, or frequencies. Chi-square test and independent-samples t-test were used for group comparisons. A manifest qualitative conventional content analysis was conducted to explore patients' experiences and needs in patient education, based on two focus groups (n = 6) and five individual interviews.

RESULTS: Almost half (43%) of the 183 SpA patients had educational needs, particularly regarding aspects of self-help, feelings, and the disease process. More educational needs were reported by women and in patients with higher disease activity, while duration of disease did not affect the needs. The qualitative analysis highlighted the importance of obtaining a guiding, reliable, and easily available patient education for management of SpA. Individual contacts with healthcare professionals were of importance, but newer media were also requested.

CONCLUSION: There are considerable educational needs in patients with SpA, and education concerning self-help, feelings, and the diseases process were raised as important issues. Healthcare professionals need to consider the importance of presenting varied formats of education based on the experiences and preferences of patients with SpA. © 2017 The Author(s).

Place, publisher, year, edition, pages
London: BioMed Central, 2017. Vol. 18, no 1, 335
Keyword [en]
Ankylosing spondylitis, Interviews, Patient education, Patient-reported outcome measures, Spondyloarthritis, Undifferentiated spondyloarthritis
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-34942DOI: 10.1186/s12891-017-1689-8ISI: 000407064300004PubMedID: 28768510Scopus ID: 2-s2.0-85026660379OAI: oai:DiVA.org:hh-34942DiVA: diva2:1141063
Note

Funding: Göteborgsregionens stiftelse för reumatologisk forskning, Sweden, and Region Halland, Sweden

Available from: 2017-09-13 Created: 2017-09-13 Last updated: 2017-09-14Bibliographically approved

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Haglund, EmmaBremander, AnnBergman, StefanLarsson, Ingrid

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BMC Musculoskeletal Disorders
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