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Utilization of formal and informal care and services at home among persons with dementia: a cross-sectional study
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).ORCID iD: 0000-0002-6624-9963
Lund University, Lund, Sweden.ORCID iD: 0000-0002-0821-1959
Lund University, Lund, Sweden.
2017 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712Article in journal (Refereed) Epub ahead of print
Abstract [en]

Background: The progression of dementia disease impliesincreasing needs for both informal and formal care andservices but also risk of institutionalisation. To betteradjust care and services in the phase preceding institu-tionalisation it is important to find out whether utilisationof formal and informal care and services is determined byincreased needs and by who meets the needs.Aim: The aim was to compare persons with dementia(65+) with different levels of cognitive impairment,regarding utilisation of formal and informal care and ser-vice at home.Methods: The participants consisted of 177 persons withdementia ≥65 years old and at risk of nursing homeadmission, divided into groups according to their cogni-tive function. Structured interviews were conductedbased on questionnaires about type and amount of for-mal and informal care utilised, as well as questionsregarding cognitive impairment, dependency in activitiesof daily living (ADLs) and neuropsychiatric symptoms. Toanalyse the data, descriptive and comparative statisticswere used.Results: The findings revealed that the group with severedementia used significantly more help with ADLs andsupervision in terms of time (number of hours and days)provided by the informal caregiver, compared with thegroup with moderate dementia. Utilisation of formal careand services was highest in the group with the most sev-ere cognitive impairments (Standardized Mini-MentalState Examination score of <9). The group with severedementia were more dependent in ADLs and had moreneuropsychiatric symptoms (hallucinations and motordisturbances). They were younger and more often cohab-itated with the informal caregiver, compared with thegroup with moderate dementia.Conclusion: This study shows that in the phase precedinginstitutionalisation the ADL and supervision needs due toprogression of dementia appear to tend to be met firstand foremost by the informal caregivers.

Place, publisher, year, edition, pages
Chichester: Wiley-Blackwell Publishing Inc., 2017.
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:hh:diva-34832DOI: 10.1111/scs.12515OAI: oai:DiVA.org:hh-34832DiVA: diva2:1137265
Available from: 2017-08-30 Created: 2017-08-30 Last updated: 2017-09-15

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Karlsson, StaffanBökberg, Christina
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CiteExportLink to record
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Citation style
  • apa
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