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A Global Web-based Programme about Cancer in Language Specific for Staff, a Sick Child and Their Family
Centrum for Children's Right, Queen Silvia's Children's Hospital Sahlgrenska University, Gothenburg, Sweden.
The Norwegian Cancer Society, Bergen, Norway.
Department of Physiological Nursing, University of California, San Francisco, USA.
Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI), Hälsofrämjande processer. Sahlgrenska Academy, Gothenburg University, Gothenburg, Sweden.
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2013 (Engelska)Ingår i: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 60, nr Suppl. 3, s. 185-185, artikel-id P-0565Artikel i tidskrift, Meeting abstract (Refereegranskat) Published
Abstract [en]

Purpose/Objective: To have expert paediatric oncology nurses to inform and explain childhood cancer diagnoses, treatments, side effects, situations and feelings, by developing a web-based programme.

Materials and Methods: The programme will be developed and tested in three steps. Step 1 is to develop a web portal with animated pictures of cancer themes based on the ’See Hear Do’ programme in Sweden and Norway. Step 2 is to add text and audio in several languages for each theme (such as Arabic, English, Spanish). Step 3 is to develop two informational sections on the web portal: one section for staff and for the patient and family. The staff, children and families will evaluate each section as appropriate before the programme is published on the web portal. A participatory design method is going to be used. The programme will also be offered to nurses in the International Society of Paediatric Oncology and nursing working group of the Pediatric Oncology in Developing Countries committee for translation into their native languages.

Results: Expected result is that the web portal can easily be downloaded via computer, iPad or mobile and can be used twofold. Staff can use this programme for self-education and for working with the child and family. The child and family can use the web programme in various situations during the child’s cancer treatment, e.g., explaining the diagnosis to family members, schoolmates, families’ networks, during phone calls using an interpreter or for persons with a visual or auditory disability.

Conclusions: Goal of the project is to globalize childhood cancer education and information with a web-based programme including pictures, text and audio in various languages. The programme is designed to consider the professional’s information and the child and family’s needs and participation. The active role of all stakeholders to ensure cultural relevance is key to this project.

Ort, förlag, år, upplaga, sidor
Hoboken, NJ: John Wiley & Sons, 2013. Vol. 60, nr Suppl. 3, s. 185-185, artikel-id P-0565
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URN: urn:nbn:se:hh:diva-28395DOI: 10.1002/pbc.24719ISI: 000324735501245OAI: oai:DiVA.org:hh-28395DiVA, id: diva2:816745
Konferens
45th Congress of the International Society of Paediatric Oncology (SIOP), Hong Kong, Hong Kong, 25-28 September, 2013
Tillgänglig från: 2015-06-03 Skapad: 2015-06-03 Senast uppdaterad: 2018-03-22Bibliografiskt granskad

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