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Patients' experiences of the implantable cardioverter defibrillator (ICD); with a focus on battery replacement and end-of-life issues
Department of Cardiology UHL, County Council of Östergötland, Linköping, Sweden.
Halmstad University, School of Social and Health Sciences (HOS), Centre of Research on Welfare, Health and Sport (CVHI).
Division of Nursing Sciences, Department of Medical and Health Sciences, Faculty of Health Sciences, Linköping University, Sweden.
Department of Cardiology, Linköping University Hospital, Linköping, Sweden.
2013 (English)In: Heart & Lung, ISSN 0147-9563, E-ISSN 1527-3288, Vol. 42, no 3, p. 202-207Article in journal (Refereed) Published
Abstract [en]

Background: ICD deactivation at end-of-life is technically uncomplicated. However, it may present a psychological challenge to healthcare professionals, patients, and next-of-kin. Objective: This study explored patients' experiences of complex issues of battery replacement and deactivation of the ICD. Methods: Semistructured interviews were administered to 37 medically stable ICD-recipients. Results: The ICD-recipients lived with an uncertain illness trajectory, but the majority had not reflected on battery replacement or elective ICD deactivation. Healthcare professionals had rarely discussed these issues with patients. However, this was consistent with the ICD-recipients' wishes. Many patients had misconceptions about the lifesaving capacity of the ICD and the majority stated that they would not choose to deactivate the ICD, even if they knew they were terminally ill, and it meant they would receive multiple shocks. Conclusion: The ICD-recipients tended not to think about end-of-life issues, which imply that many patients reach the final stages of life unaware of the option of ICD deactivation. © 2013 Elsevier Inc.

Place, publisher, year, edition, pages
Philadelphia, PA: Mosby , 2013. Vol. 42, no 3, p. 202-207
Keywords [en]
Battery replacement, deactivation, end-of -life, implantable cardioverter defibrillator, patients perspective
National Category
Other Medical Sciences not elsewhere specified
Identifiers
URN: urn:nbn:se:hh:diva-24326DOI: 10.1016/j.hrtlng.2012.11.006ISI: 000318891000008PubMedID: 23273655Scopus ID: 2-s2.0-84877119404OAI: oai:DiVA.org:hh-24326DiVA, id: diva2:684055
Note

This study was funded with grants from the Medical Research Council of Southeast Sweden (FORSS) and the Carl Jönsson's Foundation.

Available from: 2014-01-07 Created: 2014-01-07 Last updated: 2018-03-22Bibliographically approved

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Bolse, Kärstin

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