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Patients’ independence of a nurse for the administration of their subcutaneous anti-TNF therapy: A phenomenographic study
Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).ORCID-id: 0000-0002-4341-660X
Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI), Hälsofrämjande och livsstilsförändrande arbete.
Hälsohögskolan Jönköping. (Avdelning för Hälsa och vårdvetenskap)
Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI).
2010 (engelsk)Konferansepaper, Poster (with or without abstract) (Fagfellevurdert)
Abstract [en]

Background: Pain, stiffness and functional restrictions of the joints are the main problems for patients with inflammatory rheumatic diseases. When conventional drugs fail to delay the development of the disease the patient may require biological treatment such as anti-TNF therapy. Some biological drugs are administered in the form of subcutaneous injections by patients themselves. It is therefore important that the patient perspective is focused upon the life-changing situation due to the administration of regular subcutaneous injections.

Objectives: The purpose of this study was to describe variations in how patients with rheumatic diseases conceive their independence of a nurse for the administration of their subcutaneous anti-TNF therapy.

Methods: The study had a descriptive qualitative design with a phenomenographic approach. Twenty interviews were conducted based on a strategic sampling in order to achieve variation in conceptions of the phenomenon in terms of sex, age, marital status, education, illness duration, duration of medication, distance between home-hospital, and experience of intravenous infusions.

Results: Four descriptive categories emerged: 1. Struggling for independence: The patients experienced a struggle and limitations in their lives by the self-administration of the subcutaneous injections. 2. Learning for independence: Patients experienced a learning process by the self-administration of the subcutaneous injections. 3. Participating for independence; Patients experienced control over their lives by themselves administers the subcutaneous injections. 4. Freedom through independence: Patients experienced that they could manage their lives and live as independently as possible by the self-administration of the subcutaneous injections.

Conclusion: Independence of a nurse at the subcutaneous anti-TNF injections is a process. There is a striving for independence in which patients are taking themselves further by learning and participating in drug treatment and then experience the injection provides independence. Patients under treatment with subcutaneous anti-TNF injections are at different phases in the process of independence; this is not depending on how long they have self-administered subcutaneous injections.

Disclosure of Interest: None declared

Citation: Ann Rheum Dis 2010;69(Suppl3):730

Nursing

sted, utgiver, år, opplag, sider
London: BMJ , 2010. s. 730-730
Serie
Annals of the Rheumatic Diseases, ISSN 0003-4967 ; Volume 69 (Suppl3)
Emneord [en]
anti-TNF therapy, patients, phenomenographic, subcutaneous
HSV kategori
Identifikatorer
URN: urn:nbn:se:hh:diva-21464OAI: oai:DiVA.org:hh-21464DiVA, id: diva2:604815
Konferanse
Annual European Congress of Rheumatology EULAR 2010, Rome, Italy, 16-19 June
Tilgjengelig fra: 2013-02-12 Laget: 2013-02-12 Sist oppdatert: 2018-03-22bibliografisk kontrollert

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