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Exploring Barriers to Participation in Pediatric Rehabilitation: Voices of Children and Young People with Disabilities, Parents, and Professionals
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).ORCID iD: 0000-0002-3064-0442
Child and Young Rehabilitation Services Kristianstad, Region Skåne, Kristianstad, Sweden.ORCID iD: 0000-0003-2466-9107
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).ORCID iD: 0000-0003-4438-6673
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).ORCID iD: 0000-0002-3576-2393
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2021 (English)In: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 18, no 19, article id 10119Article in journal (Refereed) Published
Abstract [en]

In order to develop suitable support for participation in pediatric rehabilitation, it is important to understand what barriers need to be bridged from the perspectives of both children and adults. The aim of this study was to explore barriers to participation in pediatric rehabilitation services, according to children and young people with disabilities, parents to children with disabilities, and professionals. Data was collected in individual interviews (n = 48) and focus groups (n = 8), which were analyzed with qualitative content analysis to extract barriers to participation. Identified barriers include three categories: (1) insufficient access (controlling adults, adult-centered healthcare); (2) insufficient trust (low level of trust in adults, low level of trust in children, low self-confidence in children); and (3) insufficient involvement (norms of non-participation, low level of commitment in children). The participant groups had divergent conceptions of where and how barriers originate, and for what situations child participation is appropriate. Adult-centered healthcare and parental presence were described as barriers by all participant groups. Understanding differences in the perceptions of barriers and their origins is crucial when striving to change norms of non-participation. The findings can inform the development of new support tools and participatory formats in pediatric rehabilitation. © 2021 by the authors. Licensee MDPI, Basel, Switzerland.

Place, publisher, year, edition, pages
Basel: MDPI, 2021. Vol. 18, no 19, article id 10119
Keywords [en]
children, disabilities, barriers, participation, pediatric rehabilitation
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:hh:diva-45722DOI: 10.3390/ijerph181910119ISI: 000717230400001PubMedID: 34639419Scopus ID: 2-s2.0-85115720467OAI: oai:DiVA.org:hh-45722DiVA, id: diva2:1602369
Available from: 2021-10-12 Created: 2021-10-12 Last updated: 2021-12-01Bibliographically approved

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Teleman_Vinblad_Svedberg_Nygren_Larsson. 2021_Exploring Barriers to Participation in Pediatric Rehabilitation: Voices of Children and Young People with Disabilities, Parents, and Professionals(337 kB)211 downloads
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Teleman, BrittaSvedberg, PetraNygren, Jens M.Larsson, Ingrid

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