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Parents’ experiences of an e-health intervention implemented in pediatric healthcare: a qualitative study
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).ORCID iD: 0000-0002-4341-660X
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).ORCID iD: 0000-0003-4438-6673
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).ORCID iD: 0000-0001-5647-086X
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI).ORCID iD: 0000-0002-3576-2393
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2019 (English)In: BMC Health Services Research, ISSN 1472-6963, E-ISSN 1472-6963, Vol. 19, article id 800Article in journal (Refereed) Published
Abstract [en]

Background: The growing field of participation in healthcare has the potential to provide a number of benefits for children, patients, healthcare professionals and also the healthcare systems. According to the Convention on the Rights of the Child (UNCRC), children have the right to participate in their own healthcare and make their voice heard. Children’s opportunities for understanding their conditions, sharing their views and participating in decisions regarding their care depend on healthcare professionals but also on parents’ ability to communicate and include children. E-health solutions can remove barriers to children’s communication with healthcare professionals. The aim of this study was to explore parents’ perspectives on the outcomes of an e-health solution, Sisom, used by children during healthcare appointments.

Methods: The empirical data is based on interviews with 16 parents. In the present study constructivist, grounded theory was chosen as the method.

Results: The theory of enhancing participation, by orientating communication about healthcare towards the voice of the child instead of the parents, summarizes the process of how the outcome of Sisom for children lead to enhanced participation, by making the child the main actor and an agent in his/her own healthcare. The facilitators for achieving participation in Sisom were four interrelated outcomes; engaging, voice-guarding, raising awareness and integrity preserving. In addition to generating increased participation, it emerged that the use of Sisom also initiated a process, which was evident in all four subcategories that facilitated the child in coping with the experience of having an illness.

Conclusions: We conclude, that Sisom orientated communication about healthcare towards the voice of the child instead of the parents as well as including the child in the dialogue with the healthcare professional and thus increasing the child’s participation and human rights. © 2019 The Author(s)

Place, publisher, year, edition, pages
London, UK: BioMed Central, 2019. Vol. 19, article id 800
Keywords [en]
Children, E-health intervention, Grounded theory, Parents, Participation
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Other Health Sciences
Identifiers
URN: urn:nbn:se:hh:diva-40879DOI: 10.1186/s12913-019-4643-7PubMedID: 31690287Scopus ID: 2-s2.0-85074584965OAI: oai:DiVA.org:hh-40879DiVA, id: diva2:1368677
Funder
Swedish Childhood Cancer Foundation
Note

Other funder: Centre of Welfare, Health and Sports at Halmstad University.

Available from: 2019-11-08 Created: 2019-11-08 Last updated: 2019-11-29Bibliographically approved

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Larsson, IngridSvedberg, PetraArvidsson, SusannNygren, Jens M.Carlsson, Ing-Marie

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